Walking on Sunshine – SDR Surgery Update!

On March 29, I had Selective Dorsal Rhizotomy (SDR), a life-changing surgery that will drastically reduce and/or remove the tightness in my legs caused by spastic diplegia, the most common type of cerebral palsy. I found out about SDR last August. After getting the green light in October regarding my candidacy, I was determined to have my surgery performed by Dr. TS Park, the world-renowned Neurosurgeon acclaimed for refining the procedure. For the past twenty-five years, he has drastically changed the lives of over 2,500 children (approximately 2,436) and adults (I’m number 63 0r 64) affected by cerebral palsy.

My SDR journey started with The Power of Possibility. I had to decide whether or not SDR was the right choice for me. I ferociously read about the surgery. I communicated with many of Dr. Park’s patients about their experience and results. I weighed the benefits and the risks. The overwhelmingly positive feedback coupled with Dr. Park’s 100% success rate made this an easy decision. I had to go for it! Unfortunately, neither insurance coverage nor time was on my side. Dr. Park rarely operates on adults over the age of 40; I will be 40 in June. My Medicare HMO would not approve SDR outside the state of Florida. I went on a wild goose chase to find a loophole which would allow me to have the surgery in St. Louis with the unparalleled Dr. Park.

I contacted a doctor at Miami Children’s Hospital who was covered under my insurance. I wanted answers to basic questions before making an appointment. How many SDR surgeries has he done on adults? What were the results? What is his technique? I found out that he has done hundreds of SDR surgeries but only a few on adults. The procedures he has done on adults have only been in cases where caring for the patient was an extreme hardship. He feels SDR is not a good procedure for adults that can walk.

I refused to settle. Dr. Park is the best in the world. The countless before/after videos of his patients speak for themselves. Children who could not walk prior to SDR are now walking. The adults I’ve spoken to who have had SDR with Dr. Park feel SDR this is the best option (as opposed to Baclofen or orthopedic surgeries which do not eliminate spasticity) for us. Slaying Spasticity, the blog that inspired me to pursue SDR with Dr. Park, is an adult male’s detailed account of his journey, complete with videos documenting marked improvement in many areas.

Dr. Park has performed thousands of SDR surgeries. His surgical technique is preferred for the following reasons:

* Reduced risk of spinal deformities in later years
* Decreased post-rhizotomy motor weakness
* Reduced hip flexor spasticity by sectioning the first lumbar dorsal root
* Shorter-term, less intense back pain
* Earlier resumption of vigorous physical therapy

I refused to accept that I could not go to the best surgeon in the world. After months of trying to figure out and understand my insurance options, I threw my hands up and switched from my HMO to original Medicare, an insurance Dr. Park accepted. I also have FL Medicaid, which I hoped to apply to my medical bills. Unfortunately, FL Medicaid will most likely deny me because they do not approve services (other than in cases of emergency) outside the state of Florida. Because I would not find out how much, if any, Medicare and/or Medicaid would cover until after the surgery, I started a fundraiser to raise the $50,000+ needed for the operation and associated costs. To date, I’ve raised (and am still accepting donations) $4,500 thanks to the kindness of many people, most of whom I’ve never met. I am forever grateful for your donations and support.

It’s been almost a month since my surgery. The difference in my gait was immediate. I’m walking on sunshine with excitement! Thank you to my primary care physicians, Dr. Luis Martinez – who started the process – and his partner, Dr. Jarrod Frydman, for being on board (most physicians are not) with my desire to have SDR. Thank you to my oldest brother Anthony for traveling to St. Louis with me. I could not have done it without him. As for Dr. Park – well, there are not enough words to express how thankful I am for his healing hands and humble demeanor. Thank you to the Selective Dorsal Rhizotomy – St. Louis Children’s Hospital Facebook group for the wealth of help and information. I’m proud to be a member of such a wonderful family! This is a great place to start if you want more information about SDR with Dr. Park.

My picture with Dr. Park. Two days before SDR surgery.

This how I walked BEFORE SDR. Here is how I walk AFTER SDR! And don’t it feel GOOD! I will continue to see improvement with physical therapy 3X/week for four months. Then, it will be time for my follow-up visit with Dr. Park. I am excited to see what I will be able to do in the future. Dr. Park predicted that I will be exercising and walking with greater ease/less effort and riding a bike, the number one goal on my post-SDR bucket list! Stay tuned for more updates! Please share this post to raise awareness among those living with cerebral palsy. I stumbled upon SDR almost missing the opportunity to have this life-changing surgery. I do not want that to happen to anyone else.

My cerebral palsy (CP) Story

Reblogged from bareyournakedtruth:

My obsession with shoes started when I was just three years old. I slipped my hands through the shoes and began to crawl from room to room on my hands and knees. Thirty nine years ago, I was born two and a half months premature. I weighed only two pounds thirteen ounces - the size of a baby chicken! I stayed in an incubator for almost two months.

Read more… 1,014 more words

March is Cerebral Palsy Awareness month. My SDR surgery is on March 29...19 days away and counting! Read my CP story for updates!

HopeMob is featuring Help Nicole Get New Legs!

HopeMob is featuring Help Nicole Get New Legs! as a rotating STAFF PICK on their homepage for the next week due to the inconvenience of a system update that did not pick up my story when I originally submitted it. THANK YOU, HopeMob! PLEASE click the share button and re-tweet the link as much as possible so I can raise more money for SDR, a surgery that will eliminate the tightness in my legs due to cerebral palsy. This will help tremendously! So far, I’ve raised $3,170! I am also selling autographed copies of my book (U.S. orders only), Naked Desires, to raise money for my surgery.

Although my surgery is scheduled for March 29, I am still fundraising for the $50,000 on Fundrazr and HopeMob to increase exposure. Why? Because although Dr. Park accepts Medicare (allowing him to perform the surgery), I DO NOT know how much, if anything, Medicare will cover. Plus, if Medicare doesn’t cover at least 60% of the cost (this is what Dr. Park’s office told me), I CANNOT use Medicaid (my secondary insurance) to pick up the rest of the bill. I saw a Help Me Howard story on WSVN 7 about a six year old girl from South Florida who wanted to have the surgery with Dr. Park. Unfortunately, she was DENIED coverage by Medicaid because Dr. Park is not located in Florida.

So, I have to keep fundraising in the event that NOTHING is covered. Plus, I will most likely have deductibles, etc. I know it’s confusing….believe me, I have been trying to make sense of all of this for months! So, please, don’t think that I am trying to raise money I don’t need. I am not that type of person. I haven’t spent a cent of the $3,170 donated thus far. Part of the donation money is going to pay for my $800 hotel bill since I will be in St. Louis for eight days. I got a discounted rate and will turn in my credit card reward points for Marriott gift cards, which I will apply to my bill. I am doing everything I can to reach my goal. I so appreciate everyone who continues to support me on this journey. The surgery is the easy part. Physical therapy (4-5 times a week) will be intense. I will have to learn to walk all over again. It will be worth it!

I’m Today’s Fabulous Friday Female at Feminine1st.com!

Thank you to my friend, Jodi McMasters, who nominated me to be Today’s Fabulous Friday Female. Her article was selected for publication on July 25, 2013. This is truly an honor especially since Jodi is one of the most inspiring people I’ve ever met!

Do you know a Fabulous Friday Female? Contact Claire Brummell, Director of Feminine1st.com at claire@feminine1st.com with the following information:

1. Who is your Fabulous Friday Female? Include her name and location in the world.
2. Why is she a Fabulous Friday Female to YOU? How do you know her? What does she do? In what way is she inspiring?
3. A photo or link to a picture of her online. If there is a reason that you would prefer not to include a photo, just let Claire know.

Join over 125 single ladies for Claire’s upcoming FREE Valentine’s Day webinar about the 7 mistakes single women make when looking for love. You can check out Video 1 immediately and then join Claire on the 14th when she’ll be sharing the rest of the 7 mistakes single women make when looking for love and the one thing you need to know to attract the relationship you desire and deserve.

Check out the Free Webinar – 7 Mistakes Single Women Make When Looking for Love.

My Blog’s First Anniversary!

One year ago today, I decided to start a blog, thanks to the encouragement of my best friend, Renee. Blogging was the best decision I made in 2012! It allows me to share my articles and poems with people all around the world. I’ve met the nicest people – many of them fellow bloggers – who have supported me from the beginning. I’ll never forget how exciting it was to receive multiple awards from bloggers (six in one week) just two months after dipping my toe into the WordPress waters. Getting nominated from peers inspired me to keep going even when I wasn’t sure what I was doing! Thank you to my top three commenters: readinpleasure, thejerseygal, and boomiebol. I’ve become friends will these wonderful women. Their work is terrific!

Blogging opened up a world of possibilities. I jumped right in and started posting. Soon, I met new friends. I learned a lot from so many talented people. I joined The Blogging Mastermind Comment Tribe on Facebook – a great group that helps boost blog traffic. I was fortunate to be featured on many sites throughout the year, thanks to the following people I met (with the exception of Marisa, who is a friend in real life) as a result of blogging: Darlene from Peeking Between the Pages, Hajra Kvetches from We Blog Stalk, Gene Manual from The Whirling Blog, Alicia Rades from A Guide 4 Women, Deanna Samaan from The Lovely Pink Diva, Lisa Marie Selow, Marisa Zepierri-Caruana from Wordslingergal, and Serena from Savvy Verse & Witt.

Here are the highlights with lots of links to get you caught up:

In April, I participated in the National Poetry Month 2012 blog tour at Peeking Between the Pages.

In May, I announced GROUND BREAKING BLOGGING NEWS! Check out my blog posts as a contributing blogger for The Balancing Act.

In June, I wrote my first author guest post for The Whirling Blog. This was the first guest post I’d ever written. Thank you, Gene Manuel, for saying yes and featuring a newbie on your awesome blog. I was also the featured author interview for a special edition of The Lovely Pink Diva. Read June News to find out which awards I won just in time to celebrate my birthday!

In July, I was the first featured Wonderful Woman for A Guide 4 Women. I am honored that Alicia Rades, a fellow blogger and one of my loyal supporters, chose me to debut this new section on her site. Alicia is wonderful! Contact her if you want to nominate a wonderful woman in your life. July also marked my entrance (thanks to my brother) in a Caregiver Cruise Contest Getaway. So many people voted for me over a period of two months. Thank you for your multiple votes, shares, and tweets. The reason for my entrance was revealed when I learned about a life-changing surgery for people with cerebral palsy.

In August, my friend and Hay House best selling author Lisa Marie Selow, invited me to write an excerpt for A Positive Rebel’s Companion, an ebook she offers as a gift (just one of many cool gifts) if you order her self-help book, A Rebel Chick Mystic’s Guide. Lisa is also gifting a copy of the ebook if you make any sized donation to my campaign. Thank you, Lisa, for dedicating a post on your website about my simple dream of getting new legs.

In October, I was delighted to be featured on We Blog Stalk! simply because I asked. Wow, it really is that simple!

In November, I started a fundraiser to raise the money so I can have SDR in March. So far, I’ve raised close to $2,700 thanks to donations from family and friends – mostly facebook friends I’ve never had the pleasure of meeting. Thank you so much for your donations and support. Find out how you can help me get new legs by downloading “Don’t Let Christmas Go” for just 99 cents. Thank you to the award winning writers of “Hiding from the Rain,” Jeana Potthoff and Richard Roman, for donating their songwriter’s royalties on the first 5,000 downloads of this beautiful song.

On December 4, my poetry book, Naked Desires celebrated ten years in print! Three days later, my blog reached a major milestone! Last, but certainly not least, my friend Marisa Zeppieri-Caruana featured Naked Desires on Wordslingergal.

It’s been quite a year! I couldn’t have made it this far without the support of my readers. I am grateful to my family, friends, and all my fellow WordPress bloggers for leaving comments, liking posts and following my blog. Instead of the typical resolutions, I’m making NEW YES Resolutions! I’m saying YES to getting in good shape for my surgery! I’m saying YES to reaching new blogging heights in 2013!

What are you saying YES to this year?

My blog’s 2012 year in review

My first year as a blogger has been a success! A BIG thank you to everyone who visited my blog in 2012. Thanks for your comments, shares, tweets, and support. I could not have been successful without my loyal followers, family and friends who support my writing endeavors. I look forward to new blogging opportunities and reaching new heights in 2013. Make NEW YES Resolutions! and have a Happy New Year!

The WordPress.com stats helper monkeys prepared a 2012 annual report for this blog.

Here’s an excerpt:

600 people reached the top of Mt. Everest in 2012. This blog got about 10,000 views in 2012. If every person who reached the top of Mt. Everest viewed this blog, it would have taken 17 years to get that many views.

Click here to see the complete report.

NEW YES Resolutions!

Resolution: “A course of action determined or decided on.”

As 2012 comes to a close, we start to think about our resolutions for the new year. Work out three times a week. Lose 10 pounds. Eat more fruits and vegetebales. Most likely, you carry the same resolutions from year to year. Forget New Year’s resolutions. Let’s create NEW YES resolutions instead. Consider the following three reasons:

1. A NEW YES resolution can start any time of the year, any day of the week. In 2013, say YES to freeing yourself from the pressure of creating a list of resolutions that will let you down. According to Statistic Brain, only eight percent of people are successful in achieving their resolution. NEW YES resolutions encourage success, which is the result we all want. No one wants to feel like a failure for not following through on our intentions. When all else fails, start over. Say YES again!

2. A NEW YES resolution is about saying YES to whatever and whomever is important to you. It’s necessary for women to set boundaries. Commit to loving yourself enough to know when to say no. It’s healthy to limit your exposure to toxic people, or say no to volunteering for projects that drain your time and leave you feeling overextended. In 2013, say YES to the things and people you love. You will be happier and so will those with whom you interact. Say YES to you!

3. A NEW YES resolution sounds better than a New Years Resolution. Doesn’t it? The next time a friend asks about your New Years Resoultions, make the shift and encourage her to make NEW YES resolutions. Create a NEW YES community. Imagine spreading love and positivity ALL year round. Now, that’s the spirit! YES!

Start writing your NEW YES resolutions whenever you want! It’s your YES list. It’s never too early or too late to live life on your own terms. You can do it! YES, it’s true! It’s up to YOU!

What are you going to say YES to in 2013?

Naked Desires Featured on Wordslingergal!

Thank you to my friend and fellow writer, Marisa Zeippieri-Caruana, for featuring Naked Desires on her website: Wordslingergal. I met Marisa a few years ago when I decided to attend a Meetup group, hoping to meet some new friends. I hit the friendship lottery when I met this beautiful, successful woman, whom I admire for her kindness and prowess as a writer. Her personal story about living with Lupus is a must read for anyone facing the challenges of an autoimmune disease.

Marisa, an accomplished freelance writer featured in many publications, says her website is “for every published writer and aspiring writer out there.” I am honored that Marisa enjoys my poem Between Us so much that she decided to share it with her readers.

Milestone: 10,000 Total Views!

My blog reached 10,000 total views today!! I hoped to reach this milestone on or before bareyournakedtruth’s one year anniversary on January 4. I did it! Thank you to everyone who has visited my blog, liked a post and provided encouragement with supportive comments. I’m lucky to be a part of such a wonderful blogging community. WordPress is wonderful! Thank you to my Facebook friends and Twitter followers who have supported me on this journey.

Naked Desires Celebrates 10 Years in Print!

Today marks the tenth anniversary of my poetry book, Naked Desires, which is available for purchase in Kindle edition, hardcover, and paperback.

Naked Desires would not exist without encouragement from my friend and fellow iUniverse author, Tony DeLiso, who wrote Legacy: The Power Within in 2000 when the self-publishing industry was just getting its wings. He suggested I put my poems in a book. At first, I didn’t think much about it. I simply wrote the words that came to me most nights before going to bed. I continued writing for three years until I had enough poems to publish my book. The idea of writing a book – never mind publishing one – ever crossed my mind. I’ve been an author for ten years? Wow! It’s still hard to believe since I never planned to write a book. This blog would not exist if I hadn’t expressed my innermost thoughts in poetic form a decade ago.

Thank you to everyone who has supported me along this journey. I hope you will enjoy my poems for many years to come.

Songwriters Donate Royalties to Help Nicole Get New Legs!

The award winning writers of “Hiding from the Rain,” Jeana Potthoff and Richard Roman, are donating their songwriter’s royalties on the first 5,000 downloads of their new song, “Don’t Let Christmas Go,” to help me get new legs. For just 99 cents, you can download Don’t Let Christmas Go and help me raise the money to have  Selective Dorsal Rhizotomy (SDR) next March.

Jeana Potthoff is from Lincoln, Nebraska. She is a wife and mother to a 12-year-old daughter. Other than taking care of her family, she teaches piano and violin lessons and writes music. Since starting a writing partnership with Richard Roman in 2010, she and Richard have focused on creating songs with strong, meaningful messages.

Richard Roman is a songwriter from North Canton, Ohio. He is a lyricist who has written with composers from all over the world. In 2008, he created a website  72words.com to distribute the Secret to Happiness verse and song. The website also has the Giving Songs that he and Jeana Potthoff wrote to raise funds for good causes.

In 2009, Richard started 72 Words Productions to create virtual world music videos. He has made music videos for the Grammy nominated artist Alissa Moreno and the teen TV star from Singapore Ming Bridges. The music video of “Everyday “was is in the Rock and Roll Hall of Fame’s Library due to its historical significance. It is the first music video made with a Grammy nominated artist performing as themselves in a virtual world. Richard is the playwright for the musical Blue Moon. He wrote the book and all the lyrics to the songs. The music was composed by Denis Couture of Montreal. He produced a staged reading of Blue Moon on August 19, 2011 at the Players Guild in Canton, Ohio.

Jeana Potthoff and Richard Roman are the Giving Songwriters who wrote the song “Hiding from the Rain.” Jeana’s grandparents had Alzheimer’s and Richard’s dad had dementia. Richard created a video to honor the caregivers who give their love unconditionally. These compassionate writers use “Hiding from the Rain” to increase awareness and support. So far, 14 Alzheimer’s and caregiver organizations have shared and promoted the video to help their cause.

Jeana and Richard believe in writing songs with powerful messages. They have always wanted to write a Christmas song about how the spirit of Christmas should stay with us all year round. They were inspired from working with Shara Strand on “We’re in this Together” to write “Don’t Let Christmas Go” with her.

I became friends with Richard after learning of our mutual interest in spreading Alzheimer’s awareness. As a caregiver for my mom, I truly admire and appreciate Richard’s tireless devotion to increasing awareness and support so that our loved ones are never forgotten.

Thank you, Jeana and Richard, for donating your songwriter’s royalties from the first 5,000 downloads of “Don’t Let Christmas Go” to help me raise the money for a life-changing surgery. Your generous act of kindness embodies the spirit of your beautiful song, which encourages us to keep Christmas love in our hearts so that we can experience joy and peace every day of the year. It is an honor to know both of you.

My cerebral palsy (CP) Story

My obsession with shoes started when I was just three years old. I slipped my hands through the shoes and began to crawl from room to room on my hands and knees. Thirty nine years ago, I was born two and a half months premature. I weighed only two pounds thirteen ounces – the size of a baby chicken! I stayed in an incubator for almost two months. My family was so excited when I finally came home.

When I was eight months old, my mom stood me up on a table to change me. She noticed that if she did not hold on to me, I would wobble from side to side. I stood on the tips of my toes. I could not rest my feet flat on the floor. Lacking balance, I rarely took a step without holding on to something. My parents began to worry. They wondered why I was not walking. They took me to my pediatrician; he thought I had weak ankles. Nearly two years passed. I still was not walking on my own. My parents knew something was wrong. At 28 months, they took me for a neurological evaluation at Variety Children’s Hospital in Miami. The Director of Child Neurology informed my parents that I had (spastic diplegia) cerebral palsy (CP). The doctor told my mom I would never be a ballerina. Then he asked with a smile, “how many ballerinas do you know?” How ironic since I stood on my toes! The doctor told my parents not to force me to walk; he said I would walk when I was ready.

I grew into a happy little girl with big, brown eyes and dark hair. Each day, I discovered a new pair of shoes. I had a blast crawling around the house with my hands in shoes, which became my symbol of hope because I could not do the one thing I wanted to do most – walk. I knew I was not ready to walk on my feet, so I found another way to accomplish my goal. I did not walk like everyone else. What mattered is that I found a way to walk. All I had to do was put my hands in the shoes and go! I learned at a very young age how far I could go in life just by being determined. Looking back, I realize I probably did not even think about what I did. I knew I wanted to walk. And, I did – in my unique way.

I spent the first four and a half years of my life walking in other people’s shoes. I desperately wanted to walk in my own. On January 11, 1978, an orthopedic surgeon lengthened the Achilles tendons in my legs. The operation changed my life forever. However, the change did not happen right away. I stayed in the hospital for four days with casts up to my thighs. I remember lying still and feeling itchy. I could not wait to go home! Finally, I went home in a wheelchair. I learned to walk with my own two feet – something I had never done before. I would stand stiff against the wall staring at a brother or sister who stood across from me encouraging me to take my first steps. I was scared. Everyone in my family wanted me to walk. I didn’t move. This went on for some time.

My mom took me to the doctor for a follow up visit and expressed her concern. He looked at her straight in the eye and said, “she should not be walking at all. She is a miracle.” Learning to walk without assistance was not easy. First, I wore braces up to my knees. Then, just in time for Kindergarten, I wore full-length hip braces. As you can imagine, the other kids teased me constantly.

Eventually, I learned to walk on my own. Now, as an adult, I am experiencing problems associated with CP and the constant stress on my body. I tire easily when walking. If I walk too much, I can experience back pain. I have problems stepping up curbs with my right leg – something I never had problems doing until five years ago. This continued to be a such a problem that I asked my orthopedist for a cane. I couldn’t bring myself to use it. I could continue to have these problems and more as I age, possibly requiring the use of a wheelchair. I do not want this to happen to me!

Although I work out and try to stay active, my balance and flexibility are poor due to CP and the tightness (spasticity) it causes. Selective Dorsal Rhizotomy (SDR) is the only procedure that can permanently eliminate the tightness in my legs. This surgery will allow me to do things I’ve never even imagined – walk with greater ease and fluidity, have better balance and flexibility – just to name a few. One thing I’d love to do is ride a bike. SDR may make that possible!

My Coventry Medicare HMO insurance denied my request to have SDR in St. Louis with Dr. T.S. Park, the surgeon world renowned for this procedure – and one of the few who performs SDR on adults. Dealing with the insurance company has been a very disheartening process. **UPDATE** I switched from Coventry to original Medicare plus Medicaid as my secondary insurance. I will have the surgery on March 29! I am still fundraising because I will not know how much of the $50,000 Medicare/Medicaid will cover until AFTER my operation. FL Medicaid does not cover out of state services (only in a case of emergency), so I most likely will be denied coverage and will have to appeal.

I have raised over $4,250 so far – thanks to the kindness of family, friends and many people I’ve never had the pleasure of meeting. The kindness of strangers has truly been remarkable! All donations will be applied to costs associated with my surgery: airline tickets, hotel accommodations, insurance deductibles, physical therapy (I will need a lot of post-surgery PT), etc.

Please consider making a donation to Help Nicole Get New Legs so I don’t have to fight Medicare/Medicaid after my surgery. You can also help me get the word out by sharing my fundraiser. Just click the links below to share on Facebook, Google+ and Twitter. Thank you to everyone who has donated to and supported my cause. Every cent (and share) counts!

10 Ways to Practice Positive Rebellion

10 Ways to Practice Positive Rebellion
By Lisa Marie Selow
Hay House, Inc. Author of A Rebel Chick Mystic’s Guide
http://lisaselow.com

When you think of rebellion, do images of leather jackets, motorcycles, illegal drugs, or even violence come to mind? Maybe you think of rebel without a cause, someone who is on the path of self-destruction?

What if rebellion could be a positive thing? What if you used it in personal development to write your own rules for living? These are the ideas I explore in my book, A Rebel Chick Mystic’s Guide (published by Hay House, Inc., November 26, 2012). The book is a self-help book for brave, misfit women (or for those who aspire to be).

My book facilitates readers in writing their own guide, since no book or person can really tell you how to live your life. Part of this journey is clearing away the limiting beliefs women tend to inherit. I playfully describe this process as, “shifting the shit.” I provide tools and exercises developed from working with clients (mostly female) in my life coaching practice. These ignite readers to get off the couch and take action to create her heart’s desires. By creating a happier, more peaceful life, you are in a better place to help others and the planet as a rebel with a cause.
The following are some methods to practice positive rebellion in your own life:

1. Reject the mass media’s version of reality. The popular media often brings messages of materialism, violence, competition, greed, chaos, and doom. Rebel against this very, one-sided, limited view of the world. Don’t buy into it! Instead, focus on what is right in your own life. Trust me, so much of your life is good. If you’re reading this, chances are, you at least have computer access. I’ll bet that you also have a roof over your head, clothing, food, clean
water, and at least one person who loves you.

2. Be happy now. Don’t delay your happiness until you have the right body, job, romantic partner, house, or car. If you base your happiness on external conditions, it’s a sure way to disempower yourself. Material things wear out and conditions and people are changing. True, lasting, happiness comes from within. Happiness is a choice. Choosing happiness is the ultimate form of positive rebellion. You can choose to be happy, even if those around you are angry, depressed, negative, or whiny. Be so happy that even outer conditions such as a struggling economy or job market can’t affect your happiness.

3. Let go of your childhood pain. Don’t hold onto old hurts. Liberate yourself by forgiving your parents and caretakers. Rebel against your own resentment, anger, sadness, or frustration. Forgiveness does not mean that you condone others’ unloving behaviors. It’s releasing the negative associations in your mind and heart, so that you can feel lighter and more peaceful. You don’t even have to directly forgive the person. Just let go in your mind. It’s a process, so you forgiveness may not happen overnight.

4. Stop trying so hard to please everyone. Women especially are socialized to take care of everyone else’s needs. I describe my own journey of letting of my inner good girl and June Cleaver. It’s important to set some boundaries with love. In my book, I have readers make a list of their personal and professional needs, along with making an action plan to get these needs met. Something seemingly simple as asserting the need to have 10-15 minutes of quiet time can cause some people to have anxiety. Taking care of yourself is not selfish, but it may take some time for loved ones to adapt. Be rebellious and do it anyway, before stress affects your physical body. It’s okay to say, “I’d love to help you, but not at this time.”

5. Shift your “crap-itude.” Crap-itude is a term I use in my book to describe having a crappy attitude. Having a positive mental attitude and happiness are closely related. If you focus on what is wrong in your own life and in the world, happiness will elude you. Rebel against your inner crap. Some days, you may even have to fake it until you make it. Reject the negativity of the past in your mind, ditch your inner critics, and stop worrying about the future.

6. Be seen and be heard. Sometimes women (and men) grew up with someone giving them the limiting belief that they should “be seen and not heard.” At times, well-meaning authority figures try to quiet or even silence children. Yet, the world needs you to speak up and express yourself. There are causes of all sizes and varieties that need your help. If you don’t express yourself, others miss out on your creativity, brilliance, and wisdom. Rebel against the tendency to silence your inner truth. (Of course, share it with love and respect.)

7. Don’t do-it-yourself. In my book, I have a saying, “DIY is a lie.” Sure, you can do some things on your own. You can record your band’s demo in your basement, remodel your kitchen, or knit baby clothes on your own. Sometimes though, you need help. Maybe you nee to get some support for a health condition or addiction? Maybe you are trying to write a book, but don’t know where to start? Perhaps, you feel clueless about what to do when you grow up? It’s time to get some help! Hire a professional such as a life coach, counselor, or physician. Talk to a mentor. Check out your community’s resources. Also, find your tribe, whether it’s online or in-person groups. Successful people have teams. They cooperate, not compete. Reject the traditional rebel stereotype of being a loner and a rebel.

8. Live your purpose right now. Instead of wondering what your life purpose is or having angst about not living it, take charge! Think of your top three favorite activities or hobbies. Look for clues about your life purpose. Sometimes, your life purpose varies from your job. You don’t have to necessarily be paid doing something for it to count as your life purpose. Maybe you rock out on a drum kit on nights and weekends, but your day job is cleaning houses? You might be a professional, such as a dentist, who teaches yoga on the side. You don’t have to wait until your day job and life purpose are perfectly aligned. (Of course, don’t quit your day job. Please, make sure you can pay your bills.) Again, be a positive rebel by not delaying your happiness until you create some outer condition in your life.

9. Drop out of the School of Hard Knocks. In my book, I write about the path of the modern mystic. The modern mystic learns his or her lessons through daily life. Often, relationships are the most influential teachers. You quickly learn about your wounds or buttons, with conflicts causing you to grow. If that weren’t enough, there are some advanced classes such as Divorce 101, Bankruptcy 101, Cancer 201, or Unemployment 401. Through it all, you learn about how to be more compassionate, even if it’s just towards yourself. The form of your lessons might seem to vary from what others experience. Chances are though, others have had similar experiences. Maybe your suffering is not that unique? Even though it is hard work, you can choose to end your pain and sorrow. Again, rebel by choosing to be happy, instead.

10. Have a spiritual practice. Whether it’s the religion of your childhood or a path of your own choosing, find a way to connect with your version of god. Some call “god” different names such as the universe, source, Buddha, or the divine. Don’t get caught up in the labels. Discover what feels good to you. Maybe you meditate, do yoga, pray, chant, walk on fire, talk to angels, or go to church. The important thing is to live what you practice. Your spiritual life is not a separate part of your life. Go outside your four walls and practice those things that religions and spiritual paths teach such as love and compassion. Give those to yourself and others. Increasing your own inner peace and happiness helps you to uplift others. Instead of seeing the world as a hostile, unfriendly place, try viewing it as a place that just needs healing and love. (I risk sounding like a 1960s hippie with that prior sentence, but my inner positive rebel just doesn’t care.)

The previous ideas are to get you started. Create your own practices of positive rebellion. Observe if your life improves over time. Let me know how it goes. I’d love to hear from you!

Bio:
Lisa Marie Selow has a life mission of liberating as many people as possible. She is a rocker chick, life coach, motivational speaker, modern mystic, and women’s empowerment expert. Her specialty is helping you to get out of your comfort zone and gain courage to live your best life possible. She is the Hay House author of the book, A Rebel Chick Mystic’s Guide, a self-help book for brave, misfit women (or those who desire to be), which helps the reader write her own guide for living life on her terms. Lisa has been involved in the healing arts since 1998 in various roles such as massage therapist, energy worker, intuitive consultant, and most recently, as a life coach. She has studied both formally and informally with many top spiritual and personal development teachers for more than 20 years. Lisa lives in Detroit, Michigan with her husband, JT and a few, electric guitars and some very friendly, outdoor squirrels. You can find out more about her at her website:
http://lisaselow.com
Used with permission (c) 2012 Lisa Marie Selow.

If you order one copy of Lisa’s book, A Rebel Chick Mystic’s Guide, you’ll get access to exclusive gifts and discounts from her favorite rock star, spiritual and personal development friends!

One of the gifts is the e-book A Positive Rebelʼs Companion. I am honored to be one of 40 positive rebellion experts featured in this special collaborative collection. Check it out here!

Order your copy TODAY!

Donate to my SDR surgery!

PLEASE SHARE/RT THIS POST!

As many of you know, I was born with cerebral palsy. I am 39 years old and recently learned of a surgery that can significantly provide reduction of spasticity in my legs. This means I will have better balance, walk better, less tightness and stiffness in my legs and an overall positive effect on my life and well being. The surgery is called Selective Dorsal Rhizotomy (SDR), procedure performed on patients with cerebral palsy.

My Coventry Medicare HMO insurance denied my request to have SDR in St. Louis with Dr. Park, the surgeon world renowned for this procedure – and one of the few who performs SDR on adults. Dealing with the insurance company has been a very disheartening process.

This is where you can assist me and my family. We need to raise money for the surgery (at least $40,000), for the physical therapy needed after surgery, for airline flights and accommodations for two people to travel to St. Louis for 8-9 days for the surgery and to return four months later for a follow-up visit.

It is recommended that the surgery is done by the patient’s 40th birthday. I will be 40 this June. It would be an incredible birthday gift. I planned to have the surgery in March 2013. This will not happen unless I raise the money. I need your help to get new legs! Please reach into your hearts and help any way you can.

Thank you for your donation! Every cent counts! Please help me spread the word by sharing my story with your family and friends.

Donate Now

GROUND BREAKING BLOGGING NEWS!

Reblogged from bareyournakedtruth:

I'm VERY excited to announce that I will be a contributing blogger for The Balancing Act, a television show for women on Lifetime TV. I kept following up and my persistence paid off! This is NEW territory for me. I'm saying YES to this wonderful opportunity!

I am honored to be a part of this accomplished group of writers. Wish me luck!

Read more… 40 more words

I’m Featured on We Blog Stalk!

This morning when I opened my e-mail, the subject line that read “+Nicole Luongo you have been stalked,” quickly caught my attention. I was thrilled! Normally, I would not be so excited to learn someone is stalking me. This truly is great news!

I am honored to be featured (and stalked) on We Blog Stalk. This wonderful opportunity came about because I posted a comment congratulating another featured blogger. I asked how I could be featured, too. Hajra responded and the rest is history! I simply asked and the universe answered. Here is the lesson: if you don’t ask for what you want, you most certainly won’t get it. If you ask for what you want, there is always the possibility that you will get it. JUST ASK!

When I started blogging nine months ago, I had no idea of where it would lead or what I would share, other than poetry. Now I write about cerebral palsy and how to win the game of life. Being part of the blogging community has allowed me to meet so many wonderful, supportive people. Blogging is a perfect fit for me; I wish I’d done it sooner! I warmly welcome everyone who visits my blog, follows me on Facebook/Twitter and will gladly reply to all comments.

To read more about Hajra, please visit her personal blog at Hajra Kvetches.

The Power of Possibility

“Start by doing what’s necessary; then do what’s possible; and suddenly you are doing the impossible.” ~St. Francis of Assisi~

Today is the nine month anniversary of my blog. It is also the day I received news that will dramatically change my life. I am a candidate for Selective Dorsal Rhizotomy (SDR), a surgical procedure performed on patients with cerebral palsy (CP). This surgery is going to improve the quality of my life in so many ways. My SDR journey will be long – one filled with many emotional and physical ups and downs – and definitely worth it in the end. Please visit my friend Frantz’s inspirational blog – the one that inspired me to send my evaluation packet to Dr. TS Park in St. Louis  – Learning to Run: My Cerebral Palsy Journey , to read more about his experience with SDR.

The story of how I found out about SDR sounds too good to be true. Luckily for me, it isn’t. It all started with the Caregiver Cruise Giveaway Contest. I saw a post about the contest on Facebook. I planned to nominate myself, but before I got around to it, my brother wrote a beautiful letter on my behalf. I asked people to vote for me and they did – big time! Thank you to everyone who voted, shared/tweeted the link, and encouraged me every step of the way. Although I did not win the contest, it led me to a friendship with Marty, from whom I learned about SDR. If I didn’t believe that entering, let alone winning a caregiver contest was possible, I wouldn’t have met Marty or learned about SDR. I would have lived the rest of my life never knowing there was a surgery available that may be able to help me. It’s sad that I, like Marty and so many children and adults with CP, find out about this life-changing surgery by literally stumbling upon it.

I have this blog to thank for reminding me about the power of possibility. When I accepted the possibility of starting a blog and turned it into a reality, a whole other world opened up to me. I became part of the blogging community and in doing so, have met so many supportive people who accept and like me for who I am. If only all of you lived nearby! I will update you as I move along my SDR journey – a journey that may allow me to do things I previously could not do, like ride a bike! Believe in the power of possibility and watch what happens. Anything is POSSIBLE!

World Cerebral Palsy Day

I have cerebral palsy (CP), so I was thrilled to learn that my blog’s eight month anniversary, Sept. 4, 2012, is World Cerebral Palsy Day – an innovative way for 17 million people with CP to tell the world how they want to make their lives better. The theme for this unique day (a world first) is ‘Change my world in 1 minute’. Please wear green and visit the website for more information about how people with CP, their family and friends can submit one minute ideas suggesting ways to improve the lives of those living with CP. During the month of September, everyone is encouraged to go online, review the ideas and vote for the concepts that will have the greatest impact on people’s lives. Thank you, Charisse Living with Cerebral Palsy, for posting the information about this special day on your Facebook page. Charisse’s goal is “to show others that people with disabilities can do things other people can do, we just sometimes do things differently in our own unique way.”

In honor of World Cerebral Palsy Day, here is a powerful poem written by Marty Gregoire, founder of Footsteps of WNY, an organization that provides charitable assistance to individuals with cerebral palsy by directly purchasing medically prescribed orthopedic and therapeutic devices not covered by insurance.

I met Marty through Facebook. He saw my entry in the Caregiver Cruise Giveaway Contest, posted a comment and we became fast friends with so much in common – growing up the youngest in a large family, having cerebral palsy and being a caregiver to a mom who has Alzheimer’s Disease. Marty inspires everyone he meets. He impacts the lives of people living with CP one footstep at a time. Read why Marty runs for those who can’t in The Buffalo News.

Dealing with Disabilities

“Disability is natural. We must stop believing that disabilities keep a person from doing something. Because that’s not true – having a disability doesn’t stop me from doing anything.” Benjamin Snow, director of the award-winning short film, Thumbs Down to Pity.

Some of the best ideas come to me when I’m in the shower. Maybe it’s because the water washes away the tensions of the day, allowing me to think random thoughts. This morning, my mind wandered back to my school days. I loved learning (with the exception of any subject remotely related to math) and worked hard to earn excellent grades. I was a model student, however, other kids taunted and teased me. Due to cerebral palsy (CP), I walked with what many describe as a limp. The type of CP I have is called spastic diplegia, which means only the lower extremities are affected. At five years old, I had orthopedic surgery (Achilles tendon lengthening), which enabled me to walk. I am fully ambulatory.

It’s fair to say that dealing with a disability is not easy. In addition to living with CP, I am also a caregiver for my mom who has Alzheimer’s Disease, which is definitely disabling. I’ve been spending the past week taking care of Mom. What is even more disturbing than her disease? The insensitive, stupid remarks made by friends and neighbors. Here are a few examples:

Mom (to a friend) – “They say I have Alzheimer’s.”
Friend (to Mom) – “That’s not good.”

Mom (to me) – “Tell her what I have.”
Me (to a neighbor, somewhat reluctantly) – “She has Alzheimer’s.”
Neighbor #1 (to Mom) – “You don’t look like it.”
Neighbor #2 (to neighbor #1) – “It’s in the early stages.” Pure speculation.

Mom (to a friend who used to be a nun) – “I’m never alone. My kids take turns staying with me.”
Friend – “It would be better if you were in a nursing home.” This woman
continued with this train of thought, even after my mom said, “Oh, no, I don’t want to go to a home.”

Excuse me? When did it become acceptable to say these things to an Alzheimer’s patient? I firmly believe that perhaps people would not say these things if Mom had a different disability/disease OR they actually knew anything about Alzheimer’s and how to deal with people who have it. The Disability is Natural homepage, created by Kathie Snow (Benjamin’s mom), asks: “Isn’t it time for some common sense, new ways of thinking, and good news about disability issues?”

Caregiver Cruise Giveaway Contest...PLEASE VOTE!

Reblogged from bareyournakedtruth:

As many of you know, I am a caregiver for my 83 year old mother who is living with Alzheimer's Disease. My brother entered me in a Caregiver Cruise Giveaway Contest sponsored by Home Instead Senior Care. I need your VOTES so I can win the cruise, a Kindle Fire, a video camera AND up to 40 hours of in-home non-medical care for Mom.

Read more… 59 more words

Dear friends, I need your VOTES! I've dropped to number FIVE and need to get back to the top. As many of you know, my brother entered me in a caregiver cruise contest giveaway (our mom has Alzheimer's). Please vote (every day if you can) using your cell phone and computer, reblog this post, share the link on Facebook and Twitter until Sept. 15. I sincerely thank each one of you and promise to return the favor. Anything is POSSIBLE! With your help, I can regain the top spot! THANKS!

Milestone: Seven Month Anniversary AND 7,500 Total Views

Today is the seven month anniversary of my blog. About four days ago, I set a goal to reach 7,500 total views before midnight on Aug. 4. I needed 256 views to reach my goal. THANKS to WordPress bloggers, Facebook friends, Twitter followers and visitors, I reached my goal at 11:42 PM. I am so honored and grateful to everyone who answered my call, putting up with frequent posts and tweets. This blog has been a blessing to me. The connections I’ve made are invaluable. I look forward to the next milestone!

Walk Like An Olympian: Win the Game of Life

“The thrill of victory. The agony of defeat. The human drama of athletic competition.” -Stanley Ralph Ross

This is why we love the 2012 Summer Olympic Games, officially known as the Games of the XXX Olympiad. We admire the athletes’ dedication, endurance and physical prowess. We celebrate heroic feats with cheers and fist pumps. The excitement is contagious! The Olympics represent what it means to be the best; to be a winner. Although the goal is to stand on stage sporting a shiny medal, every competitor is a winner simply for showing up. The same is true in the game of life. Kellog’s “From Great Starts Come Great Things” Olympic campaign beautifully illustrates that there can be no destination without a beginning.

Olympians train to be the best in their athletic activity. The rest of us train for the most important event of all – life. It’s hard. Everyone struggles with challenges, disappointment, doubt. So, what sets Olympians apart from the rest of the pack? They play the game and stay in it – no matter what. They meet challenges head on, go through them, and never give up! They keep their eyes on the prize. They stay in the zone. They train consistently; repeating and perfecting routines until the impossible becomes possible. The pay-off for hard work is huge. They win medals. They make history. Gabby Douglas, who became the first African-American woman to win the all-around gymnastics gold, said:
“Gold medals are made out of sweat, blood and tears.”

We can copy our favorite champions by practicing the determination, drive and passion it takes to win. Here’s what you need to walk like an Olympian and win the game of life:

1. Commitment
2. Focus
3. Intention to succeed

Commit to playing the game. Commit to achieving your goals. Focus on what you want to accomplish. Keep doing whatever it takes to cross the finish line. Have an intention to succeed. Believe in yourself. Believe in your abilities. Keep knocking on doors until one opens. Don’t give up! Train yourself to win. Shine in the spotlight. Center stage is waiting.

Remember Me

In the corners of your mind
the space between love and loss
think back to a time gone by
when love remained
at the end of the day
passion melted our troubles away

In the memories left behind
in the corners of your mind
where past loves reside…
remember me.
(c) Nicole Luongo
7/24/12.

No Regrets

Guest Post by Alicia Rades

You can’t hold onto a grudge or the past
You’ve got to make each moment last
To live life to the fullest
You can’t regret a single moment
You’ve got to learn to forgive and forget
And live life with no regrets.

Alicia Rades has been writing poetry since she was young, and spent much of her childhood filling notebooks with whatever would come to her head. She is a wife who works as a freelance writer and enjoys bike rides, cooking, and blogging. Although she wrote this poem many years ago, it reflects several things she has been trying to live by: live life to the fullest, don’t worry about the past, and live with no regrets, meaning that you have to make the most of the opportunities that life presents to you.

Visit her blog: http://aguide4women.com

Like her blog: https://www.facebook.com/pages/A-Guide-4-Women-Blog/261296463964328


Follow her on Twitter: https://twitter.com/AliciaRades

The Angst of Alzheimer’s

“In Alzheimer’s, the mind dies first: Names, dates, places – the interior scrapbook of an entire life – fade into mists of nonrecognition.” -Matt Clark

Did you ever wish you could erase an entire day from your memory? Maybe you’d like to forget the Monday that started with a flat tire and ended with a pink slip. I’m sure there are moments we’d all like to disremember. Imagine what life would be like if forgetting – the good and bad – was your normal state of mind.

My mom is one of the 5.4 million Americans living with Alzheimer’s – the most common type of dementia. According to Facts and Figures, an annual report released by the Alzheimer’s Association, “Dementia is an umbrella term describing a variety of diseases and conditions that develop when nerve cells in the brain die or no longer function normally. The death or malfunction of these nerve cells, called neurons, causes changes in one’s memory, behavior and ability to think clearly. In Alzheimer’s disease, these brain changes eventually impair an individual’s ability to carry out such basic bodily functions as walking and swallowing. Alzheimer’s disease is ultimately fatal.”

I began to notice something was wrong with my mother back in 2001.  For the next seven years, I did everything possible to convince many, if not all, of my ten older siblings what I knew in my heart to be true:  Mom had Alzheimer’s disease. I insisted Mom go to the doctor after she took a hot pan out of the oven with bare hands. When I presented Mom’s doctor with a list of strange occurrences – most notably the oven incident (which she didn’t even remember), he denied my request to refer her to a neurologist. Although an early diagnosis is beneficial, it’s often the doctor who fails to listen to frightened family members.

Most patients who receive an Alzheimer’s diagnosis tend to be in the moderate or severe stages of the disease and are less likely to respond significantly to the medications approved by the U.S. Food and Drug Administration. These drugs may help maintain thinking, memory, and speaking skills, and help with certain behavioral problems. However, they don’t change the underlying disease process, are effective for some but not all people, and may help only for a limited time.  There is no cure.

Dealing with this devastating diagnosis takes an immeasurable toll. Caring for a loved one with Alzheimer’s disease can have high emotional, physical, and financial costs. The demands of day-to-day care, changing family roles, and difficult decisions about placement in a care facility can be hard to handle. On average, Alzheimer’s and dementia caregivers provide care one to four years more than caregivers caring for someone with an illness other than Alzheimer’s disease. They are also more likely to provide care for five years or longer.

I am a caregiver.  It’s hard.  It never seems to get any easier, especially with the discord among family members. What has gotten easier is my relationship with Mom. And that is where the angst of Alzheimer’s turns into a thing of beauty.

Caregiver Cruise Giveaway Contest…PLEASE VOTE!

As many of you know, I am a caregiver for my 83 year old mother who is living with Alzheimer’s Disease. My brother entered me in a Caregiver Cruise Giveaway Contest sponsored by Home Instead Senior Care. I need your VOTES so I can win the cruise, a Kindle Fire, a video camera AND up to 40 hours of in-home non-medical care for Mom.

Here is the link to VOTE: http://cruise.caregiverstress.com/entries/nicole-l/

Remember, you can return up to once a day to vote during the Contest Period (July 15, 2012 through September 15, 2012).  Please help spread the link on facebook, Twitter, to your friends.  You can vote TWICE a day if you use your cell phone AND computer!

Thanks so much!

My Wonderful Woman Interview

I am delighted to share that I am the first featured Wonderful Woman over at A Guide 4 Women. I am honored that a fellow blogger chose me to debut this new section on her site. Alicia is wonderful! Contact her if you want to nominate a wonderful woman in your life.

JUNE NEWS

I haven’t blogged in awhile. My life is stressful. I needed a break. I wish I could say I’m back. The truth is that I am not sure how often I’ll be able to post. My Mom has Alzheimer’s Disease, she’s deteriorating, and I will be taking care of her. I’ve missed my blogger friends, faithful followers, and new visitors. Thank you for your continued support. It means the world to me.

Here’s what’s happening in June:

6/26/12: I’ve been honored with another Versatile Blogger Award! Thank you, KD DeFehr, for the nomination. Congratulations on your award! Click on the link to learn about KD and check out the blogs she enjoys!

6/25/12: I’ve been honored with another Beautiful Blogger Award! Thank you, Gray Poet, for the nomination. Congratulations on your award! Click on the link to learn more about Gray Poet and check out some great blogs!

6/24/12: I’ve been honored with another Versatile Blogger Award! Thank you, Sally, for the nomination. Congratulations on your award! Click on the link to learn more about Sally’s journey through divorce and check out some great blogs!

6/18/12: Click on the link to read my featured author guest post for The Whirling Blog

6/17/12: Click on the link to read my From A Distance feature for the Plantation Toastmasters June Newsletter 2012

6/13/12: I’ve been honored with the One Lovely Blog Award!  Thank you to a truly lovely person, Boomie Bol, for the nomination. Click on the link for a complete list of nominees and check out some great blogs!

6/10/12: Click on the link to read my author interview for The Lovely Pink Diva Scroll down to the bottom of the page to the magazine inside the Joomag box. Click on the word Expand that appears on the June Special Edition’s cover. My interview is on page 10.

6/9/12: I turned 39! HAPPY BIRTHDAY TO ME!!

GROUND BREAKING BLOGGING NEWS!

I’m VERY excited to announce that I will be a contributing blogger for The Balancing Act, a television show for women on Lifetime TV. I kept following up and my persistence paid off! This is NEW territory for me. I’m saying YES to this wonderful opportunity!

I am honored to be a part of this accomplished group of writers. Wish me luck! I’m excited and nervous! Now I need a head shot and a bio….anyone want to help write my bio?

*UPDATE* – 10/24/12: It’s official! I am contributing blogger for The Balancing Act! Check out the my bio.

BREAKING BLOGGING NEWS!

Reblogged from bareyournakedtruth:

May is here! Help me reach my next milestone - 6,000 views. Only 142 to go. Please look around - lose yourself in some romantic love poems and thought provoking articles. Leave a comment or two. Update: I reached 6,000 total views on May 3, one day shy of my blog’s four month anniversary. Thanks for helping me achieve my goals.

Read more… 356 more words

Another award! Read on for details...

Join the Stand-Up For Kids VANwagon!

I’ve got some exciting news to share! My brother, Michael Luongo, is going to be interviewed on NBC 6′s Live Miami (the same show I was on five years ago) on Monday, April 30 at 11AM EST! Mike has been a professional comic for many years, performing for fans (adults and children) across the country. On Live Miami, Mike will talk about Stand-Up For Kids: his unique, hysterical elementary school assembly program that teaches character and life skills through the art of live stand-up comedy.

I have seen my brother follow his passion for most of my life. He NEVER stops. I can’t tell you how many times people ask him why he’s not a big star! Well, in order for that to happen, Mike needs to get national attention in a BIG way. Mike is one of eleven children – there are six boys and five boys, of which I am the youngest. Our Mom has Alzheimer’s; she has ALWAYS been Mike’s biggest supporter. It is our wish that Mom can see Mike make it BIG before her memory vanishes forever.

Mike’s dream is to travel around the country and bring his message of hope to underprivileged kids. He needs your help to make his dream a reality.

Get on the Stand-Up For Kids VANwagon! Donate any amount you can afford so Mike can reach his goal. To show his appreciation and gratitude, Mike will perform Stand-Up For Kids for FREE in schools that cannot afford to pay for it. Having a van would allow him to do this because he would not have to pay for airfare, hotel accommodations, travel expenses like renting a car, etc.

Please help my brother get an RV! Share the Stand-Up For Kids donation page
with everyone you know. Tweet the information. RE-tweet it. Post the link on facebook, and other social media sites. Make a donation if you can. Any amount helps. Let’s all stand up for kids everywhere.

National Poetry Month Guest Post for Peeking Between the Pages

I am honored to present my first guest post for Peeking Between the Pages. Thanks, Darlene, for featuring my work as part of the National Poetry Month 2012 blog tour.

FLIRT

I want to be free
to be me
the person I am
not the person
the world
wants me to be
Free me with your love

I want to be accepted as a
beautiful, intelligent woman
Love me for my:
body, mind, and spirit

I want to experience true love
the kind that tastes sweet
like chocolate
soft and soothing
rich in flavor and texture
Intoxicate me with your love

I want to be honored
like a queen on her throne
Respect me with honesty

I want to feel special
irreplaceable and unforgettable
admire me
like an original painting
with beautiful, vibrant colors
Treasure me with kindness.

Free me
Love me
Intoxicate me
Treasure me

Do you want to FLIRT?
(c) Nicole Luongo
A poem from Naked Desires: a poetic diary straight from the heart.

Game Over

I’ve played your game
and now I’m done
for it is a game
I could never have won

I wanted you to care
I wished you would share
I should have known better
games aren’t always fair

The more I played
the more I learned
love and trust
must be earned
for if it is not
you will always
get burned

I’ve played your game
and now I’m done
but don’t ever think
that means you won.
(c) Nicole Luongo

A poem from Naked Desires: a poetic diary straight from the heart.

Lovers in the Night

The attraction between us
is so painful
it hurts to look
into each other’s eyes

We’ve fought this feeling
for far too long
giving into our desires
cannot be wrong

Tonight is the right time
for us to be
lovers in the night.
(c) Nicole Luongo
4/15/12.

Loverboy

I want a boy toy
my very own
loverboy

someone to be
my play thing
a man who doesn’t mind
hanging from a string

a boy toy
would bring me
lots of joy

will you
be my
loverboy?
(c) Nicole Luongo

A poem from Naked Desires: a poetic diary straight from the heart.

Between Us

Every time I see you
I remember…
the way your hands felt
on my bare skin
so comforting
so soothing

I remember
the caress of your lips
how you ached
to taste my love
to feel the warmth
of my body
pressed against your chest

I remember the shyness
that quickly turned
to lust and passion
as we gave in to our desires

Every time I see you
I remember…
the nights that were…
just between us.
(c) Nicole Luongo
A poem from Naked Desires: a poetic diary straight from the heart.

“Unleashing the Goddess Within”

April is National Poetry Month. I am honored to be reading poetry for Women Inspiring Women’s “Unleashing the Goddess Within” special event. Ladies, please RSVP by April 17. Let’s unleash the goddess within all of us!

Here is the information:

• THE LAST DATE FOR PURCHASE IS APRIL 17, 2012.

• WE ONLY HAVE 2, 5 MINUTE SPOTS LEFT IF YOU WANT TO PROMOTE YOUR BUSINESS OR EVENT.

• A PORTION OF THE SALES WILL BE GOING TO A WOMEN’S SHELTER.

Any questions or comments please don’t hesitate to call or e-mail us. Thank you and make today a FANTASTIC day!

SATURDAY
APRIL 21, 2012
6 PM (sharp!)
MAMA FU’S Restaurant
3257 Hollywood Blvd
Hollywood, Florida 33021
RSVP ONLY!
Space is Limited

See RSVP information below
Women Inspiring Women to Greatness
proudly presents
Unleashing the Goddess Within

It’s time to rediscover our values as women and tap into the source of our true power. Join us for a night of inspiration, empowerment, connections and fun.

SATURDAY APRIL 21, 2012

Presentation by
Life and Relationship Coach Tiffany Rashel
“Give Yourself Permission”

Entertainment by:
Nicole Luongo – Author of Naked Desires

Spoken word by:

Mr. Wispers & Brian Poem

Comedy style of:

Willie B

Appetizers provided & drinks for purchase
Goodie Bags & More!

Promoting your business or event?
We have 5 minute presentation spots available.

There will be an opportunity for networking, so please bring business cards or flyers. We will also be distributing goodie bags at the end, so feel free to bring your business cards or items to be included in the goodie bags. We request that you add something memorable to those items, for example, attach your business card to a little Hershey, Kiss or Dove chocolate, or cookies or any other ideas you may have.

We are looking for 3 volunteers. Your admission will be free.

Your Inner Goddess is Waiting
Hurry and RSVP Today!

RSVP
ONLY This event is strictly RSVP. Seating is limited! RSVP today at:

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The Vow

I went to see “The Vow” today. The movie is inspired by true events. It tells the story of a young married couple (Leo and Paige) whose lives are turned upside down when the Paige suffers a traumatic brain injury as a result of a car crash and doesn’t remember her husband. Although the movie wasn’t as good as it could have been, it depicted true love at its best. I’ve never been married so I wonder:

Who will
vow to love me
now and forever
when we are
old and gray
until the end
of our days

Who will
vow to love me
to fight for me
in sickness and health
foreclosure and wealth
good days, bad moods
arguments, disappointments

Who will
vow to love me
just as I am?

Will you?
(c) Nicole Luongo
3/27/12.

Equality Bites

I’ve been thinking about the Trayvon Martin case – the one that has the entire country up in arms because a teenager was shot and killed by a neighborhood watchman. I’ve always been sensitive to stories where people are treated unfairly, but this one hits where it truly hurts – in my heart.

I volunteer in a predominately African-American school. On Friday, I noticed one of my first graders kept putting on the hoodie of his jacket despite repeated reminders to take it off. Students are not allowed to wear hoodies in class. Although this student is only six years old, it later dawned on me that *perhaps* he insisted on wearing a hoodie to show support for the slain teenage boy who lost his life in a senseless tragedy.

Another tragedy is that our founding fathers said we are all created equal, yet we are all not treated equal. I say this as a minority – a disabled American woman of Italian heritage – often mistaken for Spanish. Just being a woman puts me behind the equality eight ball. Add being disabled may put me further behind in some circles. But, I am not African-American.

In fact, I wouldn’t want to be African-American in our society. Our nation has improved with regard to accepting people of all races (thanks to Dr., martin Luther King, Jr.), but we still have a l-o-n-g way to go. An African-American person is judged no matter where they go. When have you ever heard of a white person being afraid of another white person walking past them?

Geraldo Rivera said that Trayvon’s hoodie is as much to blame for his death as the man who shot him. At first, this comment enraged me. Now, I agree with what I think Geraldo was implying, which is that a young black man wearing a hoodie conjures up only one image: a thug. It’s true. If I wear a hoodie and walk down the street, no one will be suspicious of me. It’s sad that Trayvon didn’t have the right to wear whatever he wanted. Instead, his clothing choice actually contributed to his death. Let me be clear: a hoodie did not kill Trayvon, however, I wonder if he would still be alive had he not been wearing one. And, because of this case, are we to send a conflicting message to our children in order to save their lives? A message which says, “We live in a free country, you are equal, but don’t wear a hoodie in public or else you might get shot.”

Equality bites in America if you are different in any way. Unfortunately, this lesson cost Trayvon Martin his life.

Forbidden Love

Our bodies melted
between the sheets of passion
that lay in a heap
on my bed

Sheets that are reckless
like the expression
of our forbidden love
warm and soft
waiting to be touched

Sheets that are now neat and crisp
but not clean of the lust
that is deeply woven
in the fabric of our hearts

An unmade bed
is all that is left
to remind me
of you.
(c) Nicole Luongo
A poem from Naked Desires: a poetic diary straight from the heart.

Love Awaits

Love awaits
in my dreams
when you come to me
late at night
in the dark
while I sleep
you move gently
between the sheets
and press against me
with your cheek
slowly, softly
our lips meet
my knees feel weak
it’s only your touch
I seek
in my dreams
when love awaits.
(c) Nicole Luongo
3/21/2012.

Luck Be a Lady Last Night

I really don’t consider myself an unlucky person. I’ve found spare change on the ground a time or two; sometimes, even dollar bills! Last night, on St. Patrick’s Day, I headed out to Your Big Picture Cafe in my green tunic – excited to see friends and hear good music.

Maybe others would consider me unlucky, especially if I tell them the story about how my 1998 Honda Civic was stolen last April. Even after a such personal violation, I moved throughout life grateful for what I have – and, sometimes, for what I don’t have. It was an anxious two months, trying to find a good car I could actually afford.

Boy, did I hit the jackpot when I found a 2009 sunshine yellow Hyundai Accent decked out with extras (courtesy of the previous owner) like a GPS system and a hands free communication device. I went to great lengths to protect my new car. I invested in a Ravelco anti-theft device. http://www.ravelco.com. It’s a car specific plug that prevents your vehicle from starting unless it is securely in place. Although costly ($500), I recommend Ravelco to anyone who wants to do their best to prevent their car from being stolen. It may save you money on insurance premiums, too.

Last night, I arrived at the cafe, shut off my car, removed the plug, called a friend, then started up the walkway to the store’s entry. There were clues all night that something was wrong, only I wasn’t paying attention. I noticed that my plug was not on my key chain. I didn’t think anything of it because I do not always remember to remove the plug. Plus, I was in a bit of a daze from being bored all week.

At the end of the evening, my friend Matt walked me to my car. He drove off while I got in my car and quickly realized I could not start it. I called Matt and asked him to come back. Thank God he answered his phone! Both of us looked for the plug everywhere – inside my car, inside the cafe, on the walkway leading to the cafe, underneath my car, inside my car again – well, you get the idea. Did we find the missing plug? No such luck.

Matt drove me home so I could get my back-up plug. I went out this morning, hoping I’d find it hiding in my car, although just a remote possibility given it’s size. Sadly, it wasn’t there. That’s okay, at least I still had my car and could drive it. I liked the idea of having two plugs (included in the installation price). If I want a second one, I’ll have to pay $35 for it. Maybe if I tell the company I lost it they will send me one for free? I know what you’re thinking…”GOOD LUCK!”

Eternal Love

Your love is like a candle
its flame burning bright
with the promise of new beginnings
and two hearts full of light

Let your love shine through
the windows of your soul
day and night
for the rest of your life

Listen with your heart
keep an Open mind
Value each other
and
Enjoy every moment together
for your love
is like a candle
a symbol
of the eternal flame
that will burn bright
all the days of your life
now and forever…
as husband and wife.
(c) Nicole Luongo

TMI Blog Award

Thank you, K. Shawn Edgar, for giving me the T.M.I. (Too Much Information) Blog Award! Click here to check out his work: http://pullofthesun.wordpress.com

The TMI Blog Award honors those blogs that discuss everything in detail and do it well. These bloggers aren’t afraid to discuss their most awkward, embarrassing and intimate experiences with honesty, humor and little to no filter.

I present the TMI Blog Award to my friend Eva at http://gabrielsfury.wordpress.com Congratulations, Eva!

Rules to follow if you receive the TMI award:

1. Thank the person who presented you with the award.

2. Link back to the blogger who presented the award to you.

3. Share an awkward, embarrassing, or intimate story in 100 to 250 words.

4. Copy and paste the blog award on your blog.

5. Present the TMI Blog Award to 5 – 10 deserving blogs.

6. Let them know they have been chosen by leaving a comment on their blog.

Here is an intimate poem from my book, Naked Desires: http://bareyournakedtruth.wordpress.com/2012/01/19/anticipation/

Lies

I don’t know why
I can’t say goodbye
there’s nothing between us
it’s all just a lie

a lie of the heart
a lie of the mind
how could I be
so blind?

I wanted to believe
the lies you told
they started to get old
when you turned cold
said you didn’t care
suddenly,
I didn’t want to be there

always waitin’ for you
to follow through
on the lies you told me
just so
you could hold me

close to you
that’s where I want to be
but I don’t know why
’cause you ain’t no prize
you’re just a player
who’s tryin’ to take me
for a ride

so, thanks for nothin’
keep drivin’ past
you’re no Duan Jauan
it’s time for me
to start movin’ on
I won’t look back
in fact
I’ll thank
the stars above
when you’re finally gone
from my head
my heart
oh, how I am ready
to make a new start
as I part from this lie
and say goodbye
to the distant memory
of you and I.

I never thought
it would come to this
since we started out
in such bliss
to go back in time
that is my wish
but
it was all part of your plan
you never wanted to be
my man

all you want
is another number to dial
when you feel the hunger pangs
in your brain
the urge to talk
to a real woman who is
beautiful, smart,
sexy, and tart

so, you pile on the charm
thinkin’ you’ve done no harm
now, she wants
the real McCoy
but
you’re just a decoy

so, what do you do?
you back away
and tell her
to keep waitin;
that you’ll want her
someday

now, she’s pissed
’cause she knows
she’s been dissed

she’s the one
you’re gonna miss
the one who keeps you up at night
thinkin’ ’bout how her hair
shines in the light
and her mind so bright
always right on the money
but, now, she doesn’t want to be
your honey
or another number
just like all the others

so, she walks away
with her head held high
looks back at you
with tears in her eyes
and says:

this is our last goodbye
I wish I could thank you
for the ride, but, all you did
was
mess with my mind
tellin’ me lies
’bout how you wanted me
now, I just want to be free
when you come to me
on your knees
tellin’ me how sorry you are
for the way
you treated me

but
what you have to say
will fall on deaf ears
I’ve cried too many years

there’s nothing you can do
to make me come back
because all the things I need:

love
respect
and honesty…
you lack

so, this is it
the final act
in the story of us
the next time
I need a ride
I think
I’ll take the bus.
(c) Nicole Luongo
A poem from Naked Desires: a poetic diary straight from the heart.

You Will Never Know

You will never know
how much I care
or that when you speak
I breath your air

You will never know
how happy I am
when you are near
or that your laughter
melts my tears

You will never know
that I don’t want to love you
it is a choice I didn’t make
my heart belongs to you
and is here for you to take.

Oh, how I love you…
You will never know.
(c) Nicole Luongo
3/18/03.

One Wish

If I had
just one wish
it would be
for our lips to kiss
late at night
in the dark
under the moon’s bliss

If I had
just one more chance
in your eyes
I’d glance
in a trance
under the spell
of your love

If I had
just one wish
we’d find our way
back
to that moment in time
under the moon
when
late at night
in the dark
we kissed.

If I had just one wish…
(c) Nicole Luongo
1/19/03.

My Heart is an Ocean

My heart is an ocean
and love is my sea
filled with emotion and ecstasy.

Come swim in my ocean
get lost
on our wave of love
taste the salt
on your lips

My heart is an ocean
and love is my sea
filled with memories
of you and me.
(c) Nicole Luongo

Beautiful Blogger Award

Thanks once again, to Autumn and Gabrielle, for nominating me for the Beautiful Blogger Award. I am grateful for their support, especially since I am new to the bloggesphere. Please pay it forward by visiting their whimsical site (I love the twins forever art work). You can see the complete list of winners here: http://autumnsunshineandgabrielleangel.wordpress.com/2012/03/12/beautiful-blog-award/

Instructions for the award:

1. Thank the person who gave you the award.

2. Paste the award on your blog.

3. Link the person who nominated you for the award.

4. Nominate 7 bloggers or less.

5. Post links to the 7 blogs you nominated.

I nominate the following blogs for The Beautiful Blogger Award:

Daily Empowerment – http://dailyempowerment.wordpress.com/

My Creative Fire – http://mycreativefire.wordpress.com/

Moments in Transition – http://momentsintransition.wordpress.com/

Congratulations to everyone! Thanks Autumn and Gabby!