02 Oct 2013
Tags: awareness, Cerebral Palsy, CP, SDR, SDR surgery, Selective Dorsal Rhizotomy, support, World Cerebral Palsy Day
Today is World Cerebral Palsy Day. Wear green to show your support.
Here is some helpful information about CP, the different types (I have spastic diplegia), etc. People with CP are bright, capable individuals with dreams and goals. Join me in celebrating them today.
Thank you to everyone who accepts and loves me just the way I am. It’s been six months since my SDR surgery. I’m doing great! I haven’t shared the fundraiser link in awhile because I do not believe in asking for more than I need. I’m still waiting for all the bills to come in. So far, some of the contributions (I still have money in the SDR fund) have allowed me to pay for airline tickets, hotel accommodations/food in St. Louis and medical bills. I would not have been able to do this without donations from family and friends.
29 Sep 2013
in News, Writing
Tags: A Step Above, A Step Above Dance Studio, anniversary, ballroom dancing, Cerebral Palsy, CP, dance, dance studio, dancing, Dancing with the Stars, Dr. Park, Dr. T.S. Park, dreams, foxtrot, journey, Netfit.tv, neurosurgeon, new legs, Nicole Luongo, Nicole Luongo YouTube, Nicole's New Legs - SDR Journey, passion, salsa, SDR, SDR anniversary, SDR surgery, Selective Dorsal Rhizotomy, St. Louis, world renowned, YouTube
When you dance, your purpose is not to get to a certain place on the floor. It’s to enjoy each step along the way.” –Wayne Dyer
Today is my SDR Anniversary. Six months ago, I had Selective Dorsal Rhizotomy (SDR), the only surgical procedure that can remove tightness caused by spastic diplegia, the most common type of cerebral palsy. My four month follow-up visit in St. Louis with Dr. T.S. Park went well. He was thrilled with my results! The tightness in my legs was completely gone, I walked much straighter (no more bent knees) with heel-toe motion (instead of striking the floor with my toes first), no longer leaning heavily to one side and both legs were even (they weren’t pre-SDR) – eliminating the need for ugly shoe orthotics. I was doing so well that I didn’t have to go to physical therapy anymore. WOW!
Dr. Park recommended that I continue to exercise (anything and everything I wanted to do) and most important, stretch for thirty minutes every day. Exercise has always been a part of my life. Stretching has not. I started the Netfit.tv 90 day body transformation program in August. I finally felt strong enough to to do these challenging workouts. They are no joke (I modify when needed) – cardio, core, burpees, planks, push-ups, weights – all in 30 minutes, give or take a few! The best part? They’re FREE if you have a Roku (love it) or Smart tv! If not, you can become a member on-line for a nominal monthly fee. I’ve been exercising six days a week (except Sundays) for the past seven weeks. Week eight starts tomorrow. I could have done these workouts before my operation. The difference is that now, in Dr. Park’s words (what he predicted for me after SDR), I can “do more with less effort.” Most people do not realize that because my CP is mild, I could dance, exercise, jump, run, play golf, play tennis, shoot hoops, and throw a football – all before SDR.
It’s important to understand that the surgery does not cure cerebral palsy. I still have the same challenges I had before: poor balance, range of motion issues, tight hamstrings, heel cords and hip flexors. The wonderful news is that my gait is dramatically different, I can walk up and down stairs without holding on (I would never attempt this before SDR) and I balance better on my right leg. I tried rock climbing for the first time. Wow, is that hard! What’s next? I want to learn how to ride a bike. I always thought (and was told, in one form or another) it was impossible. Contrary to popular belief, people with cerebral palsy who have not had SDR, can ride a two wheel bike. My SDR journey is teaching me to stop believing in limits – those imposed by myself or others. All of us are capable of much more than we imagine.
About a month ago, I decided to go back to ballroom dancing. I was curious about what it would be like with my new legs. It’s the same, yet different because I move better. I’m not so concerned about losing my balance. My legs, due to the lack of tightness, can move more freely. I still have problems with balance and turning around. Dancing is so much fun! Here I am with my instructor, William, at A Step Above Dance Studio.
First, I chose to dance the foxtrot in honor of Dr. Park who, in addition to being a world renowned neurosurgeon, is also a competitive ballroom dancer. The foxtrot is one of his favorite dances. It’s also good for my hip flexors. Since SDR, it’s much easier to step back with my left leg, an integral part of this ballroom dance. Second, I chose to dance the salsa, my favorite of all!
Thank you to everyone at A Step Above for warmly welcoming me into the family. A special thank you to William for his charisma and kindness. He’s the reason I signed up for lessons (with him, of course) at the studio. He never lets me sit out of ANY class regardless of whether or not I think I can do it. He believes in my ability. When we dance, William leads me around the dance floor just like he would any other partner. No kid gloves. Just laughter and a great smile. All I have to do is follow his lead, try not to mess up or step on his toes! Or hit him. I feel so bad when that happens! William, thank you for making me feel like a star!
I dance because I love it. I dance because I CAN. I sat on the sidelines of life for many years. I rarely got asked to dance. Now, after my surgery, I’m going to dance like EVERYBODY is watching! If I mess up – “SO WHAT, WHO CARES!” Thanks to A Step Above, Dr. Park and SDR, I’m enjoying each step along the way. In my head, I dance just like the pros on Dancing with the Stars. And, I’m much taller, too!
Life is too short. If you get the chance to sit it out or dance – I hope you dance!
14 Sep 2013
Tags: dance, forever, hearts, lives, love, love poem, music, Nicole Luongo, passion, poem, poetry, rhythm, rhythm of our hearts, romance, time
It stands the test of time
like aged cheese and fine wine
a perfect blend
of the days and nights
of our lives
the dance between the sheets
the music that beats
to the rhythm of our hearts…
(c) Nicole Luongo
29 Jun 2013
Tags: "Dr. J", 2013 NBA Champions, 2013 NBA finals, basketball, basketball game, belief, believe, Boston, Boston Celtics, Bostonian, champion, champions, comeback, D-Wade, doctors, Dr. T.S. Park, Dr. TS Park, drama, Dwayne Wade, family, friends, fundraiser, Game 6, Help Nicole Get New Legs, history, http://www.dwaynewade.com, http://www.fundrazr.com, Julius Erving, Larry Bird, Los Angeles Lakers, magic, medical bills, Miami Heat, Mike Miller, moniker, NBA, NBA Championship parade, NBA playoffs, nickname, nicknames, Nicole Luongo, parade, physical therapist, Ray Allen, San Antonio Spurs, SDR, SDR surgery, Selective Dorsal Rhizotomy, shoeless Mike Miller, SLCH, South Florida, St. Louis Children's Hospital, support, surgery, teammates, The North End, victory, winners, winning
“When people believe in you, you can do amazing things in this world.” –Dwayne Wade
I used to be such an avid basketball fan that – at the tender age of two – my love for Julius “Dr. J” Erving earned me the nickname “Doc” bestowed upon me by my brother, John. Or, as I’ve also heard, the moniker was the result of my being so smart at a young age that I could have been a doctor! Being the youngest of eleven (six brothers, four sisters), from a family with Bostonian North End roots, it was inevitable that I’d be bit by the sports bug. It seemed basketball was in our blood, especially when it came to the Boston Celtics. Larry Bird was so revered in our house that my brother John named his cocatiel “Larry Bird!” When Larry “Legend” Bird – arguably the greatest NBA player of all time – retired in 1992, the sport was never the same. I boycotted basketball. My heart wasn’t in the game anymore.
I’m a native of South Florida. It’s always exciting to see your city’s team come out on top. Miami is as close as I’m going to get to my hometown of Hollywood. So, out of boredom and curiosity, I tuned into the second half of Game 6 of the 2013 NBA Finals. The Heat needed to win. They were down by double digits with just 30 seconds remaining in regulation play. A win seemed impossible. Then, magic started to happen! The shoeless shot by Mike Miller. The three pointer by Ray Allen that kept the Heat’s hope for a repeat title alive. The dramatic overtime ending reminiscent of a Celtics-Lakers rivalry. I’d just watched of the greatest games – and comebacks – in NBA history! The Miami Heat went on to win back-to-back championships in dramatic fashion, defeating the San Antonio Spurs in seven games. WOW!
I watched the 2013 NBA Championship parade paying particular attention to player interviews. Dwayne Wade talked about how having a great support system – family and teammates who believe in him – helped him overcome injuries during the playoffs. And, that’s when it hit me. Even three time NBA champions need people who believe in them. We all do. It’s because the Heat players believed in themselves – and each other – that they were able to pull off such a miraculous upset. They didn’t count themselves out even when the outcome looked bleak. A basketball game is not over until the final buzzer blares. The same is true in life. Be a champion! Stay in the game, (play your game and no one else’s) don’t count yourself out, and remember Wade’s wise words. Surround yourself with people who believe in you. You will be amazed at what you can do!
Life will surprise you. And, so will your friends – or people you thought were your friends. Prior to having Selective Dorsal Rhizotomy Surgery (SDR), I set up a fundraiser to raise money for the operation. The outpouring of love and support truly amazed me. What amazed me even more was that the majority of people who donated to Help Nicole Get New Legs have never even met me! On the contrary, I’ve received hurtful e-mails from friends I’ve known for years, saying it’s not appropriate to ask people to help pay for my medical bills. Their words were condescending and insensitive. I was shocked by their lack of support. It should not be unreasonable to expect long-time friends to call after having major spinal surgery. I am thankful for friends who visited me during my recovery.
D-Wade’s words got me thinking about my people – doctors, family, friends, my physical therapist and a wonderful on-line community – all of whom donated to my fundraiser and/or supported me on my SDR journey. THANK YOU for your donations (frequent flyer miles, money, etc.), love, support (making phone calls, writing e-mails/letters on my behalf, selling copies of my book, etc.) – and most importantly – for believing in me. THANK YOU for believing that I deserved to go to the best SDR neurosurgeon, Dr. T.S. Park, and encouraging me not settle for less! It’s made all the difference in my world!
07 Jun 2013
Tags: accomplish, achievements, birthday, blog, determination, facebook, fitness, heel, heel cords, heel to toe, heels, indoor rock climbing, jump, jumping, motion, Nicole Luongo, Nicole's New Legs - SDR Journey, physical therapy, Plantation Medical Rehab & Wellness, PT, rock climbing, SDR, SDR surgery, SDR update, Selective Dorsal Rhizotomy, self-talk, spinal surgery, strength, stretch, subscribe, updates, walking, Wikipedia, Wikipedia.org, You Tube, You Tube channel
SDR UPDATE – TEN WEEKS POST-OP:
Here I am jumping for joy in physical therapy (PT) at Plantation Medical Rehab & Wellness. Although I could jump before the surgery (not sure if I could jump up on a step), I would not have been able to do this three weeks ago due to lack of strength.
Why am I jumping in PT? There is so much required of the body just to be able to walk. And, to walk correctly, you need to be able to strike the floor first with your heel, then push off your toe, allowing the opposite leg to come forward. Since my heel cords are tight, it is important to stretch so I can walk correctly – heel toe, heel toe (this is what my self-talk sounds like) Jumping requires the same motion – just in a different way.
I'm turning 40 on Sunday! What a gift it is to be able to accomplish this just ten weeks after having spinal surgery!I look forward to sharing more accomplishments (indoor rock climbing is next) as I continue along my SDR journey. I invite you subscribe to my You Tube channel to receive the latest video updates.
29 May 2013
Tags: ability, achieve, AMA, AMA mantra, attitude, baseball, believe, body, Boston Red Sox, capacity, Cerebral Palsy, components, dedication, definition of success, desire, deterioration, Dr. Park, Dr. TS Park, fuel, gait, hamstrings, hard work, heel cords, hip flexor, hip flexor muscles, inventory, journey, Lou Holtz, mantra, motivation, muscles, necessary, physical prowess, physical therapy, Plantation Medical Rehab & Wellness, principles, propel, prowess, PT, reality, revelation, SDR, SDR surgery, secret, Selective Dorsal Rhizotomy, skills, Spastic cerebral palsy, stamina, strength, succeed, success, talents
“Ability is what you are capable of doing. Motivation determines what you do. Attitude determines how well you do it.” –Lou Holtz
Ever since having Selective Dorsal Rhizotomy (SDR) surgery nearly nine weeks ago, inquiring minds want to know if it was a success. I made it through the three hour operation without any complications. I am working hard to regain my stamina and strength in hourly physical therapy (PT) sessions, three times a week, at Plantation Medical Rehab & Wellness. Plus, I do daily PT exercises for my hamstrings, heel cords, and hip flexor muscles – the three areas Dr. Park recommended I focus on after the operation. People marvel at how much better I walk now, often saying, “It’s a miracle!” Sounds successful, right? It depends.
I say this because the definition of success is subjective, based on personal feelings and opinions. Every SDR journey is unique. Each patient has her own starting point, as well as personal milestones she’d like to accomplish. I’m still scratching the surface of what I am capable of both mentally and physically. While I’m happy with my results so far – the work that will truly gauge my level of SDR success – has only just begun. I will be successful! I know the secret to success – AMA: Ability, Motivation, Attitude. It works every time. There is no quick fix. There is no short cut. You cannot fail when you apply these tried and true principles. Let’s delve into the three components of AMA.
1. Ability: The capacity to do something. You must have the necessary skills and/or talents in order to achieve a goal. Let’s say, for example, that you want to play shortstop for the Boston Red Sox. You need to be honest about your ability to play major league baseball. Do you have the physical prowess necessary to succeed? Wanting to do something and being able are to do it are two vastly different concepts. Yesterday (with the aide of a gait belt and my awesome therapist, Jon) in PT, I practiced jumping on a trampoline, then on the ground, before jumping from the ground onto a step. Based upon my performance on the trampoline, etc., Jon knew I had the ability – the necessary skills (balance, muscle strength,etc.) to jump onto the step.
2. Motivation: The desire to do something. You can have all the ability in the world, but without strong desire – or motivation – nothing will happen. Motivation starts and ends with you. Only you know why you want to achieve or do something. Use your desire to fuel the motivation to achieve success. Motivation inspires action. Action propels success! Like the definition of success, our sources of motivation are subjective. Know what motivates you and use it to succeed! My motivation for having SDR surgery includes the desire to do more with less effort, learn how to ride a bike, and prevent further deterioration (and, possibly, a wheelchair, later in life) of my body due to cerebral palsy. I also (this revelation came after SDR) didn’t want to be stared at in public because of the way I walk. My gait has improved so much that this is now a reality!
3. Attitude: A way of thinking typically reflected in a person’s behavior. The way you think – your attitude – determines how you will behave. If you think you can do something, you’re right. If you think you can’t do something, you’re still right…unfortunately. Like Lou Holtz said, attitude also determines how well you do something. Yesterday, My PT reminded me to tell myself (after tentative attempts) I was going to jump on the step. Guess what? It worked! Go ahead – have an attitude! It’s essential to your success.
Take inventory of your abilities and talents. Know what motivates you. Get an attitude and believe in yourself! AMA: Ability + Motivation + Attitude = The Secret to Success! Use the AMA mantra along with dedication and hard work to achieve your goals. Success is guaranteed!
10 Mar 2013
March is Cerebral Palsy Awareness month. My SDR surgery is on March 29...19 days away and counting! Read my CP story for updates!
18 Feb 2013
Tags: appreciate, buy Naked Desires, Cerebral Palsy, donations, Dr. Park, fundraiser, goal, Help Nicole Get New Legs, HopeMob, hopemob.org, intense, journey, local news, Medicaid, Medicare, Naked Desires, physical therapy, SDR, Selective Dorsal Rhizotomy, St. Louis, support, surgery, walk, WSVN 7, www.hopemob.org
HopeMob is featuring Help Nicole Get New Legs! as a rotating STAFF PICK on their homepage for the next week due to the inconvenience of a system update that did not pick up my story when I originally submitted it. THANK YOU, HopeMob! PLEASE click the share button and re-tweet the link as much as possible so I can raise more money for SDR, a surgery that will eliminate the tightness in my legs due to cerebral palsy. This will help tremendously! So far, I’ve raised $3,170! I am also selling autographed copies of my book (U.S. orders only), Naked Desires, to raise money for my surgery.
Although my surgery is scheduled for March 29, I am still fundraising for the $50,000 on Fundrazr and HopeMob to increase exposure. Why? Because although Dr. Park accepts Medicare (allowing him to perform the surgery), I DO NOT know how much, if anything, Medicare will cover. Plus, if Medicare doesn’t cover at least 60% of the cost (this is what Dr. Park’s office told me), I CANNOT use Medicaid (my secondary insurance) to pick up the rest of the bill. I saw a Help Me Howard story on WSVN 7 about a six year old girl from South Florida who wanted to have the surgery with Dr. Park. Unfortunately, she was DENIED coverage by Medicaid because Dr. Park is not located in Florida.
So, I have to keep fundraising in the event that NOTHING is covered. Plus, I will most likely have deductibles, etc. I know it’s confusing….believe me, I have been trying to make sense of all of this for months! So, please, don’t think that I am trying to raise money I don’t need. I am not that type of person. I haven’t spent a cent of the $3,170 donated thus far. Part of the donation money is going to pay for my $800 hotel bill since I will be in St. Louis for eight days. I got a discounted rate and will turn in my credit card reward points for Marriott gift cards, which I will apply to my bill. I am doing everything I can to reach my goal. I so appreciate everyone who continues to support me on this journey. The surgery is the easy part. Physical therapy (4-5 times a week) will be intense. I will have to learn to walk all over again. It will be worth it!
31 Dec 2012
Tags: 2012, blog stats, top comments, top posts, visitors, Wordpress, year in review
My first year as a blogger has been a success! A BIG thank you to everyone who visited my blog in 2012. Thanks for your comments, shares, tweets, and support. I could not have been successful without my loyal followers, family and friends who support my writing endeavors. I look forward to new blogging opportunities and reaching new heights in 2013. Make NEW YES Resolutions! and have a Happy New Year!
The WordPress.com stats helper monkeys prepared a 2012 annual report for this blog.
Here’s an excerpt:
600 people reached the top of Mt. Everest in 2012. This blog got about 10,000 views in 2012. If every person who reached the top of Mt. Everest viewed this blog, it would have taken 17 years to get that many views.
Click here to see the complete report.
07 Dec 2012
Tags: blog, blogging milestone, community, facebook, followers, journey, milestone, total views, Twitter, Wordpress
My blog reached 10,000 total views today!! I hoped to reach this milestone on or before bareyournakedtruth’s one year anniversary on January 4. I did it! Thank you to everyone who has visited my blog, liked a post and provided encouragement with supportive comments. I’m lucky to be a part of such a wonderful blogging community. WordPress is wonderful! Thank you to my Facebook friends and Twitter followers who have supported me on this journey.
18 Nov 2012
in News, Writing
Tags: Achilles tendons, airline tickets, balance, cause, Cerebral Palsy, CP, crowdfunding, doctor, donate, Dr. Park, facebook, family, fight, flexibility, fundraiser, Fundrazr.com, goal, Google+, Help Nicole Get New Legs, hope, hotel accommodations, insurance deductibles, kindness, Medicaid, Medicare, operation, physical therapy, premature, PT, SDR, Selective Dorsal Rhizotomy, share, shoes, spastic diplegia, spasticity, St. Louis, support, surgeon, surgery, tightness, Twitter, walk, world renowned
My obsession with shoes started when I was just three years old. I slipped my hands through the shoes and began to crawl from room to room on my hands and knees. Thirty nine years ago, I was born two and a half months premature. I weighed only two pounds thirteen ounces – the size of a baby chicken! I stayed in an incubator for almost two months. My family was so excited when I finally came home.
When I was eight months old, my mom stood me up on a table to change me. She noticed that if she did not hold on to me, I would wobble from side to side. I stood on the tips of my toes. I could not rest my feet flat on the floor. Lacking balance, I rarely took a step without holding on to something. My parents began to worry. They wondered why I was not walking. They took me to my pediatrician; he thought I had weak ankles. Nearly two years passed. I still was not walking on my own. My parents knew something was wrong. At 28 months, they took me for a neurological evaluation at Variety Children’s Hospital in Miami. The Director of Child Neurology informed my parents that I had (spastic diplegia) cerebral palsy (CP). The doctor told my mom I would never be a ballerina. Then he asked with a smile, “how many ballerinas do you know?” How ironic since I stood on my toes! The doctor told my parents not to force me to walk; he said I would walk when I was ready.
I grew into a happy little girl with big, brown eyes and dark hair. Each day, I discovered a new pair of shoes. I had a blast crawling around the house with my hands in shoes, which became my symbol of hope because I could not do the one thing I wanted to do most – walk. I knew I was not ready to walk on my feet, so I found another way to accomplish my goal. I did not walk like everyone else. What mattered is that I found a way to walk. All I had to do was put my hands in the shoes and go! I learned at a very young age how far I could go in life just by being determined. Looking back, I realize I probably did not even think about what I did. I knew I wanted to walk. And, I did – in my unique way.
I spent the first four and a half years of my life walking in other people’s shoes. I desperately wanted to walk in my own. On January 11, 1978, an orthopedic surgeon lengthened the Achilles tendons in my legs. The operation changed my life forever. However, the change did not happen right away. I stayed in the hospital for four days with casts up to my thighs. I remember lying still and feeling itchy. I could not wait to go home! Finally, I went home in a wheelchair. I learned to walk with my own two feet – something I had never done before. I would stand stiff against the wall staring at a brother or sister who stood across from me encouraging me to take my first steps. I was scared. Everyone in my family wanted me to walk. I didn’t move. This went on for some time.
My mom took me to the doctor for a follow up visit and expressed her concern. He looked at her straight in the eye and said, “she should not be walking at all. She is a miracle.” Learning to walk without assistance was not easy. First, I wore braces up to my knees. Then, just in time for Kindergarten, I wore full-length hip braces. As you can imagine, the other kids teased me constantly.
Eventually, I learned to walk on my own. Now, as an adult, I am experiencing problems associated with CP and the constant stress on my body. I tire easily when walking. If I walk too much, I can experience back pain. I have problems stepping up curbs with my right leg – something I never had problems doing until five years ago. This continued to be a such a problem that I asked my orthopedist for a cane. I couldn’t bring myself to use it. I could continue to have these problems and more as I age, possibly requiring the use of a wheelchair. I do not want this to happen to me!
Although I work out and try to stay active, my balance and flexibility are poor due to CP and the tightness (spasticity) it causes. Selective Dorsal Rhizotomy (SDR) is the only procedure that can permanently eliminate the tightness in my legs. This surgery will allow me to do things I’ve never even imagined – walk with greater ease and fluidity, have better balance and flexibility – just to name a few. One thing I’d love to do is ride a bike. SDR may make that possible!
My Coventry Medicare HMO insurance denied my request to have SDR in St. Louis with Dr. T.S. Park, the surgeon world renowned for this procedure – and one of the few who performs SDR on adults. Dealing with the insurance company has been a very disheartening process. **UPDATE** I switched from Coventry to original Medicare plus Medicaid as my secondary insurance. I will have the surgery on March 29! I am still fundraising because I will not know how much of the $50,000 Medicare/Medicaid will cover until AFTER my operation. FL Medicaid does not cover out of state services (only in a case of emergency), so I most likely will be denied coverage and will have to appeal.
I have raised over $4,250 so far – thanks to the kindness of family, friends and many people I’ve never had the pleasure of meeting. The kindness of strangers has truly been remarkable! All donations will be applied to costs associated with my surgery: airline tickets, hotel accommodations, insurance deductibles, physical therapy (I will need a lot of post-surgery PT), etc.
Please consider making a donation to Help Nicole Get New Legs so I don’t have to fight Medicare/Medicaid after my surgery. You can also help me get the word out by sharing my fundraiser. Just click the links below to share on Facebook, Google+ and Twitter. Thank you to everyone who has donated to and supported my cause. Every cent (and share) counts!
11 Nov 2012
in News, Writing
Tags: Cerebral Palsy, crowdfunding, Dr. Park, Selective Dorsal Rhizotomy, spasticity, St. Louis Children's Hospital, surgery
PLEASE SHARE/RT THIS POST!
As many of you know, I was born with cerebral palsy. I am 39 years old and recently learned of a surgery that can significantly provide reduction of spasticity in my legs. This means I will have better balance, walk better, less tightness and stiffness in my legs and an overall positive effect on my life and well being. The surgery is called Selective Dorsal Rhizotomy (SDR), procedure performed on patients with cerebral palsy.
My Coventry Medicare HMO insurance denied my request to have SDR in St. Louis with Dr. Park, the surgeon world renowned for this procedure – and one of the few who performs SDR on adults. Dealing with the insurance company has been a very disheartening process.
This is where you can assist me and my family. We need to raise money for the surgery (at least $40,000), for the physical therapy needed after surgery, for airline flights and accommodations for two people to travel to St. Louis for 8-9 days for the surgery and to return four months later for a follow-up visit.
It is recommended that the surgery is done by the patient’s 40th birthday. I will be 40 this June. It would be an incredible birthday gift. I planned to have the surgery in March 2013. This will not happen unless I raise the money. I need your help to get new legs! Please reach into your hearts and help any way you can.
Thank you for your donation! Every cent counts! Please help me spread the word by sharing my story with your family and friends.
05 Oct 2012
Tags: ask, blogging, blogging community, Cerebral Palsy, facebook, game of life, Google+, Hajra Kvetches, lesson, life, Naked Desires, Nicole Luongo, possibility, Twitter, We Blog Stalk, win, winning
This morning when I opened my e-mail, the subject line that read “+Nicole Luongo you have been stalked,” quickly caught my attention. I was thrilled! Normally, I would not be so excited to learn someone is stalking me. This truly is great news!
I am honored to be featured (and stalked) on We Blog Stalk. This wonderful opportunity came about because I posted a comment congratulating another featured blogger. I asked how I could be featured, too. Hajra responded and the rest is history! I simply asked and the universe answered. Here is the lesson: if you don’t ask for what you want, you most certainly won’t get it. If you ask for what you want, there is always the possibility that you will get it. JUST ASK!
When I started blogging nine months ago, I had no idea of where it would lead or what I would share, other than poetry. Now I write about cerebral palsy and how to win the game of life. Being part of the blogging community has allowed me to meet so many wonderful, supportive people. Blogging is a perfect fit for me; I wish I’d done it sooner! I warmly welcome everyone who visits my blog, follows me on Facebook/Twitter and will gladly reply to all comments.
To read more about Hajra, please visit her personal blog at Hajra Kvetches.
04 Sep 2012
in Guest Posts, Poetry, Writing
Tags: acceptance, alone, Alzheimer's Disease, body, caregiver, Caregiver Cruise Giveaway Contest, caregivers, Cerebral Palsy, change, Charisse Living with Cerebral Palsy, charitable assistance, charity, creation, dance, death, devices, dignity, dreams, facebook, family, fears, friend, gifts, greatness, guest post, I AM, invincible, jeers, joy, laugh, love, nightmare, orthopedic, pain, passion, prison, sing, spirit, taunts, teacher, The Buffalo News, therapeutic, time, torment, unique, within, World Cerebral Palsy Day
I have cerebral palsy (CP), so I was thrilled to learn that my blog’s eight month anniversary, Sept. 4, 2012, is World Cerebral Palsy Day – an innovative way for 17 million people with CP to tell the world how they want to make their lives better. The theme for this unique day (a world first) is ‘Change my world in 1 minute’. Please wear green and visit the website for more information about how people with CP, their family and friends can submit one minute ideas suggesting ways to improve the lives of those living with CP. During the month of September, everyone is encouraged to go online, review the ideas and vote for the concepts that will have the greatest impact on people’s lives. Thank you, Charisse Living with Cerebral Palsy, for posting the information about this special day on your Facebook page. Charisse’s goal is “to show others that people with disabilities can do things other people can do, we just sometimes do things differently in our own unique way.”
In honor of World Cerebral Palsy Day, here is a powerful poem written by Marty Gregoire, founder of Footsteps of WNY, an organization that provides charitable assistance to individuals with cerebral palsy by directly purchasing medically prescribed orthopedic and therapeutic devices not covered by insurance.
I met Marty through Facebook. He saw my entry in the Caregiver Cruise Giveaway Contest, posted a comment and we became fast friends with so much in common – growing up the youngest in a large family, having cerebral palsy and being a caregiver to a mom who has Alzheimer’s Disease. Marty inspires everyone he meets. He impacts the lives of people living with CP one footstep at a time. Read why Marty runs for those who can’t in The Buffalo News.
09 Aug 2012
Tags: achilles tendon, Alzheimer's, Alzheimer's Disease, awards, Benjamin Snow, caregiver, Cerebral Palsy, common sense, CP, disabilities, disability, Disability is Natural, disability issues, disease, excellence, friend, good news, grades, ideas, insensitive, Kathie Snow, kids, limp, mom, neighbor, nun, nursing home, orthopedic surgery, random, remarks, school, short film, shower, speculation, student, stupid, taunt, tease, tensions, thoughts, Thumbs Down to Pity, walk, water, YouTube
“Disability is natural. We must stop believing that disabilities keep a person from doing something. Because that’s not true – having a disability doesn’t stop me from doing anything.” Benjamin Snow, director of the award-winning short film, Thumbs Down to Pity.
Some of the best ideas come to me when I’m in the shower. Maybe it’s because the water washes away the tensions of the day, allowing me to think random thoughts. This morning, my mind wandered back to my school days. I loved learning (with the exception of any subject remotely related to math) and worked hard to earn excellent grades. I was a model student, however, other kids taunted and teased me. Due to cerebral palsy (CP), I walked with what many describe as a limp. The type of CP I have is called spastic diplegia, which means only the lower extremities are affected. At five years old, I had orthopedic surgery (Achilles tendon lengthening), which enabled me to walk. I am fully ambulatory.
It’s fair to say that dealing with a disability is not easy. In addition to living with CP, I am also a caregiver for my mom who has Alzheimer’s Disease, which is definitely disabling. I’ve been spending the past week taking care of Mom. What is even more disturbing than her disease? The insensitive, stupid remarks made by friends and neighbors. Here are a few examples:
Mom (to a friend) – “They say I have Alzheimer’s.”
Friend (to Mom) – “That’s not good.”
Mom (to me) – “Tell her what I have.”
Me (to a neighbor, somewhat reluctantly) – “She has Alzheimer’s.”
Neighbor #1 (to Mom) – “You don’t look like it.”
Neighbor #2 (to neighbor #1) – “It’s in the early stages.” Pure speculation.
Mom (to a friend who used to be a nun) – “I’m never alone. My kids take turns staying with me.”
Friend – “It would be better if you were in a nursing home.” This woman
continued with this train of thought, even after my mom said, “Oh, no, I don’t want to go to a home.”
Excuse me? When did it become acceptable to say these things to an Alzheimer’s patient? I firmly believe that perhaps people would not say these things if Mom had a different disability/disease OR they actually knew anything about Alzheimer’s and how to deal with people who have it. The Disability is Natural homepage, created by Kathie Snow (Benjamin’s mom), asks: “Isn’t it time for some common sense, new ways of thinking, and good news about disability issues?”
06 Aug 2012
I need your VOTES! I've dropped to number FIVE and need to get back to the top. As many of you know, my brother entered me in a caregiver cruise contest giveaway (our mom has Alzheimer's). Please vote (every day if you can) using your cell phone and computer, reblog this post, share the link on Facebook and Twitter until Sept. 15. I sincerely thank each one of you and promise to return the favor. Anything is POSSIBLE! With your help, I can regain the top spot! THANKS!
04 Aug 2012
Tags: anniversary, blog, connections, facebook, goals, milestone, news, thank you, Twitter, visitors, Wordpress
Today is the seven month anniversary of my blog. About four days ago, I set a goal to reach 7,500 total views before midnight on Aug. 4. I needed 256 views to reach my goal. THANKS to WordPress bloggers, Facebook friends, Twitter followers and visitors, I reached my goal at 11:42 PM. I am so honored and grateful to everyone who answered my call, putting up with frequent posts and tweets. This blog has been a blessing to me. The connections I’ve made are invaluable. I look forward to the next milestone!
03 Aug 2012
Tags: 2012 Summer Olympic Games, accomplishments, athletes, beginning, believe, blood, campaign, celebrate, challenges, champion, commitment, competition, consistency, courage, dedication, defeat, destination, determination, drive, endurance, energy, excellence, excitement, feats, finish line, focus, Gabby Douglas, game, goal, hard work, heart, heroes, history, intensity, intention, Kellog's, life, luck, medal, mental conditioning, obstacles, Olympic Games, passion, pay off, persistence, physical prowess, positivity, possiblity, powerful, preparation, pressure, pride, results, risks, sacrifice, skill, spirit, sports, Stanley Ralph Ross, strength, strive, struggle, success, sweat, tears, The Olympics, train, training, victory, win, winner, zone
“The thrill of victory. The agony of defeat. The human drama of athletic competition.” -Stanley Ralph Ross
This is why we love the 2012 Summer Olympic Games, officially known as the Games of the XXX Olympiad. We admire the athletes’ dedication, endurance and physical prowess. We celebrate heroic feats with cheers and fist pumps. The excitement is contagious! The Olympics represent what it means to be the best; to be a winner. Although the goal is to stand on stage sporting a shiny medal, every competitor is a winner simply for showing up. The same is true in the game of life. Kellog’s “From Great Starts Come Great Things” Olympic campaign beautifully illustrates that there can be no destination without a beginning.
Olympians train to be the best in their athletic activity. The rest of us train for the most important event of all – life. It’s hard. Everyone struggles with challenges, disappointment, doubt. So, what sets Olympians apart from the rest of the pack? They play the game and stay in it – no matter what. They meet challenges head on, go through them, and never give up! They keep their eyes on the prize. They stay in the zone. They train consistently; repeating and perfecting routines until the impossible becomes possible. The pay-off for hard work is huge. They win medals. They make history. Gabby Douglas, who became the first African-American woman to win the all-around gymnastics gold, said:
“Gold medals are made out of sweat, blood and tears.”
We can copy our favorite champions by practicing the determination, drive and passion it takes to win. Here’s what you need to walk like an Olympian and win the game of life:
3. Intention to succeed
Commit to playing the game. Commit to achieving your goals. Focus on what you want to accomplish. Keep doing whatever it takes to cross the finish line. Have an intention to succeed. Believe in yourself. Believe in your abilities. Keep knocking on doors until one opens. Don’t give up! Train yourself to win. Shine in the spotlight. Center stage is waiting.
24 Jul 2012
Tags: corners, corners of your mind, left behind, loss, love, lovers, memories, mind, passion, poetry, reflections, remember, space, time, troubles
In the corners of your mind
the space between love and loss
think back to a time gone by
when love remained
at the end of the day
passion melted our troubles away
In the memories left behind
in the corners of your mind
where past loves reside…
(c) Nicole Luongo
22 Jul 2012
in Guest Posts, Poetry
Tags: A Guide 4 Women, Alicia Rades, bike rides, blogging, childhood, cooking, forget, forgive, freelance writer, grudge, guest post, learn, life, moment, opportunities, past, poetry, regrets, wife, writing
Guest Post by Alicia Rades
You can’t hold onto a grudge or the past
You’ve got to make each moment last
To live life to the fullest
You can’t regret a single moment
You’ve got to learn to forgive and forget
And live life with no regrets.
Alicia Rades has been writing poetry since she was young, and spent much of her childhood filling notebooks with whatever would come to her head. She is a wife who works as a freelance writer and enjoys bike rides, cooking, and blogging. Although she wrote this poem many years ago, it reflects several things she has been trying to live by: live life to the fullest, don’t worry about the past, and live with no regrets, meaning that you have to make the most of the opportunities that life presents to you.
Visit her blog: http://aguide4women.com
Like her blog: https://www.facebook.com/pages/A-Guide-4-Women-Blog/261296463964328
Follow her on Twitter: https://twitter.com/AliciaRades
21 Jul 2012
Tags: Alzheimer's Association, Alzheimer's Disease, angst, beauty, caregivers, Dementia, family, fear, forgetting, illness, loss, Matt Clark, medications, memory behavior
“In Alzheimer’s, the mind dies first: Names, dates, places – the interior scrapbook of an entire life – fade into mists of nonrecognition.” -Matt Clark
Did you ever wish you could erase an entire day from your memory? Maybe you’d like to forget the Monday that started with a flat tire and ended with a pink slip. I’m sure there are moments we’d all like to disremember. Imagine what life would be like if forgetting – the good and bad – was your normal state of mind.
My mom is one of the 5.4 million Americans living with Alzheimer’s – the most common type of dementia. According to Facts and Figures, an annual report released by the Alzheimer’s Association, “Dementia is an umbrella term describing a variety of diseases and conditions that develop when nerve cells in the brain die or no longer function normally. The death or malfunction of these nerve cells, called neurons, causes changes in one’s memory, behavior and ability to think clearly. In Alzheimer’s disease, these brain changes eventually impair an individual’s ability to carry out such basic bodily functions as walking and swallowing. Alzheimer’s disease is ultimately fatal.”
I began to notice something was wrong with my mother back in 2001. For the next seven years, I did everything possible to convince many, if not all, of my ten older siblings what I knew in my heart to be true: Mom had Alzheimer’s disease. I insisted Mom go to the doctor after she took a hot pan out of the oven with bare hands. When I presented Mom’s doctor with a list of strange occurrences – most notably the oven incident (which she didn’t even remember), he denied my request to refer her to a neurologist. Although an early diagnosis is beneficial, it’s often the doctor who fails to listen to frightened family members.
Most patients who receive an Alzheimer’s diagnosis tend to be in the moderate or severe stages of the disease and are less likely to respond significantly to the medications approved by the U.S. Food and Drug Administration. These drugs may help maintain thinking, memory, and speaking skills, and help with certain behavioral problems. However, they don’t change the underlying disease process, are effective for some but not all people, and may help only for a limited time. There is no cure.
Dealing with this devastating diagnosis takes an immeasurable toll. Caring for a loved one with Alzheimer’s disease can have high emotional, physical, and financial costs. The demands of day-to-day care, changing family roles, and difficult decisions about placement in a care facility can be hard to handle. On average, Alzheimer’s and dementia caregivers provide care one to four years more than caregivers caring for someone with an illness other than Alzheimer’s disease. They are also more likely to provide care for five years or longer.
I am a caregiver. It’s hard. It never seems to get any easier, especially with the discord among family members. What has gotten easier is my relationship with Mom. And that is where the angst of Alzheimer’s turns into a thing of beauty.
17 Jul 2012
Tags: Alzheimer's Disease, caregivers, contest, cruise, giveaway, Home Instead Senior care, vote
As many of you know, I am a caregiver for my 83 year old mother who is living with Alzheimer’s Disease. My brother entered me in a Caregiver Cruise Giveaway Contest sponsored by Home Instead Senior Care. I need your VOTES so I can win the cruise, a Kindle Fire, a video camera AND up to 40 hours of in-home non-medical care for Mom.
Here is the link to VOTE: http://cruise.caregiverstress.com/entries/nicole-l/
Remember, you can return up to once a day to vote during the Contest Period (July 15, 2012 through September 15, 2012). Please help spread the link on facebook, Twitter, to your friends. You can vote TWICE a day if you use your cell phone AND computer!
Thanks so much!
16 Jul 2012
Tags: A Guide 4 Women, accomplishments, Alicia Rades, Alzheimer's Disease, buy Naked Desires, caring, Cerebral Palsy, compassionate, creative, determined, disover who you are, facebook, Florida Atlantic University, inspiration, inteeligent, interview, kind, kindness, life lessons, love, making a difference, Nicole Luongo, passion, poignant, strong, The Whirling Blog, trials, Twitter, wonderful woman
I am delighted to share that I am the first featured Wonderful Woman over at A Guide 4 Women. I am honored that a fellow blogger chose me to debut this new section on her site. Alicia is wonderful! Contact her if you want to nominate a wonderful woman in your life.
21 May 2012
Tags: community blogger, contributing blogger, exciting news, Lifetime TV, television show, The Balancing Act, women, writing
I’m VERY excited to announce that I will be a contributing blogger for The Balancing Act, a television show for women on Lifetime TV. I kept following up and my persistence paid off! This is NEW territory for me. I’m saying YES to this wonderful opportunity!
I am honored to be a part of this accomplished group of writers. Wish me luck! I’m excited and nervous! Now I need a head shot and a bio….anyone want to help write my bio?
*UPDATE* – 10/24/12: It’s official! I am contributing blogger for The Balancing Act! Check out the my bio.
01 May 2012
in Awards, News
Another award! Read on for details...
28 Apr 2012
Tags: Alzheimer's, appreciation, dream, goal, gofundme.com, gratitude, laughter, Live Miami, Michael Luongo, Stand-Up For Kids
I’ve got some exciting news to share! My brother, Michael Luongo, is going to be interviewed on NBC 6′s Live Miami (the same show I was on five years ago) on Monday, April 30 at 11AM EST! Mike has been a professional comic for many years, performing for fans (adults and children) across the country. On Live Miami, Mike will talk about Stand-Up For Kids: his unique, hysterical elementary school assembly program that teaches character and life skills through the art of live stand-up comedy.
I have seen my brother follow his passion for most of my life. He NEVER stops. I can’t tell you how many times people ask him why he’s not a big star! Well, in order for that to happen, Mike needs to get national attention in a BIG way. Mike is one of eleven children – there are six boys and five boys, of which I am the youngest. Our Mom has Alzheimer’s; she has ALWAYS been Mike’s biggest supporter. It is our wish that Mom can see Mike make it BIG before her memory vanishes forever.
Mike’s dream is to travel around the country and bring his message of hope to underprivileged kids. He needs your help to make his dream a reality.
Get on the Stand-Up For Kids VANwagon! Donate any amount you can afford so Mike can reach his goal. To show his appreciation and gratitude, Mike will perform Stand-Up For Kids for FREE in schools that cannot afford to pay for it. Having a van would allow him to do this because he would not have to pay for airfare, hotel accommodations, travel expenses like renting a car, etc.
Please help my brother get an RV! Share the Stand-Up For Kids donation page
with everyone you know. Tweet the information. RE-tweet it. Post the link on facebook, and other social media sites. Make a donation if you can. Any amount helps. Let’s all stand up for kids everywhere.
22 Apr 2012
Tags: blog tour, guest post, love, love poetry, Naked Desires, National Poetry Month, Nicole Luongo, Peeking Between the Pages, sand, sea, The sea, water
I am honored to present my first guest post for Peeking Between the Pages. Thanks, Darlene, for featuring my work as part of the National Poetry Month 2012 blog tour.
21 Apr 2012
Tags: beautiful, chocolate, free, honesty, intelligent, intoxicate, kindness, love, Naked Desires, Nicole Luongo, queen, respect, treasure, woman
I want to be free
to be me
the person I am
not the person
wants me to be
Free me with your love
I want to be accepted as a
beautiful, intelligent woman
Love me for my:
body, mind, and spirit
I want to experience true love
the kind that tastes sweet
soft and soothing
rich in flavor and texture
Intoxicate me with your love
I want to be honored
like a queen on her throne
Respect me with honesty
I want to feel special
irreplaceable and unforgettable
like an original painting
with beautiful, vibrant colors
Treasure me with kindness.
Do you want to FLIRT?
(c) Nicole Luongo
A poem from Naked Desires: a poetic diary straight from the heart.
20 Apr 2012
Tags: games, Naked Desires, Nicole Luongo, poetry
I’ve played your game
and now I’m done
for it is a game
I could never have won
I wanted you to care
I wished you would share
I should have known better
games aren’t always fair
The more I played
the more I learned
love and trust
must be earned
for if it is not
you will always
I’ve played your game
and now I’m done
but don’t ever think
that means you won.
(c) Nicole Luongo
A poem from Naked Desires: a poetic diary straight from the heart.
15 Apr 2012
Tags: attraction, desires, lovers, lust, night
The attraction between us
is so painful
it hurts to look
into each other’s eyes
We’ve fought this feeling
for far too long
giving into our desires
cannot be wrong
Tonight is the right time
for us to be
lovers in the night.
(c) Nicole Luongo
14 Apr 2012
Tags: boy toy, joy, loverboy, man, Naked Desires, play, toy
I want a boy toy
my very own
someone to be
my play thing
a man who doesn’t mind
hanging from a string
a boy toy
would bring me
lots of joy
(c) Nicole Luongo
A poem from Naked Desires: a poetic diary straight from the heart.
05 Apr 2012
Tags: bare, body, caress, desires, lips, love, lovers, lust, Naked Desires, passion, skin
Every time I see you
the way your hands felt
on my bare skin
the caress of your lips
how you ached
to taste my love
to feel the warmth
of my body
pressed against your chest
I remember the shyness
that quickly turned
to lust and passion
as we gave in to our desires
Every time I see you
the nights that were…
just between us.
(c) Nicole Luongo
A poem from Naked Desires: a poetic diary straight from the heart.
02 Apr 2012
Tags: Naked Desires, National Poetry Month, Nicole Luongo, poetry, Unleashing the goddess within, women inspiring women to greatness
April is National Poetry Month. I am honored to be reading poetry for Women Inspiring Women’s “Unleashing the Goddess Within” special event. Ladies, please RSVP by April 17. Let’s unleash the goddess within all of us!
Here is the information:
• THE LAST DATE FOR PURCHASE IS APRIL 17, 2012.
• WE ONLY HAVE 2, 5 MINUTE SPOTS LEFT IF YOU WANT TO PROMOTE YOUR BUSINESS OR EVENT.
• A PORTION OF THE SALES WILL BE GOING TO A WOMEN’S SHELTER.
Any questions or comments please don’t hesitate to call or e-mail us. Thank you and make today a FANTASTIC day!
APRIL 21, 2012
6 PM (sharp!)
MAMA FU’S Restaurant
3257 Hollywood Blvd
Hollywood, Florida 33021
Space is Limited
See RSVP information below
Women Inspiring Women to Greatness
Unleashing the Goddess Within
It’s time to rediscover our values as women and tap into the source of our true power. Join us for a night of inspiration, empowerment, connections and fun.
SATURDAY APRIL 21, 2012
Life and Relationship Coach Tiffany Rashel
“Give Yourself Permission”
Nicole Luongo – Author of Naked Desires
Spoken word by:
Mr. Wispers & Brian Poem
Comedy style of:
Appetizers provided & drinks for purchase
Goodie Bags & More!
Promoting your business or event?
We have 5 minute presentation spots available.
There will be an opportunity for networking, so please bring business cards or flyers. We will also be distributing goodie bags at the end, so feel free to bring your business cards or items to be included in the goodie bags. We request that you add something memorable to those items, for example, attach your business card to a little Hershey, Kiss or Dove chocolate, or cookies or any other ideas you may have.
We are looking for 3 volunteers. Your admission will be free.
Your Inner Goddess is Waiting
Hurry and RSVP Today!
ONLY This event is strictly RSVP. Seating is limited! RSVP today at:
Tel: 954-305-9933 or 954-415-6292
The event cost is $25.00 in advance (cash, checks or PayPal)
$30.00 at the door (cash only)
Please provide desired payment method when you RSVP.
27 Mar 2012
Tags: love, movies, The Vow, traumatic brain injury, true love
I went to see “The Vow” today. The movie is inspired by true events. It tells the story of a young married couple (Leo and Paige) whose lives are turned upside down when the Paige suffers a traumatic brain injury as a result of a car crash and doesn’t remember her husband. Although the movie wasn’t as good as it could have been, it depicted true love at its best. I’ve never been married so I wonder:
vow to love me
now and forever
when we are
old and gray
until the end
of our days
vow to love me
to fight for me
in sickness and health
foreclosure and wealth
good days, bad moods
vow to love me
just as I am?
(c) Nicole Luongo
25 Mar 2012
Tags: African-American, equality, hoodies, justice, Trayvon Martin, unfair treatment
I’ve been thinking about the Trayvon Martin case – the one that has the entire country up in arms because a teenager was shot and killed by a neighborhood watchman. I’ve always been sensitive to stories where people are treated unfairly, but this one hits where it truly hurts – in my heart.
I volunteer in a predominately African-American school. On Friday, I noticed one of my first graders kept putting on the hoodie of his jacket despite repeated reminders to take it off. Students are not allowed to wear hoodies in class. Although this student is only six years old, it later dawned on me that *perhaps* he insisted on wearing a hoodie to show support for the slain teenage boy who lost his life in a senseless tragedy.
Another tragedy is that our founding fathers said we are all created equal, yet we are all not treated equal. I say this as a minority – a disabled American woman of Italian heritage – often mistaken for Spanish. Just being a woman puts me behind the equality eight ball. Add being disabled may put me further behind in some circles. But, I am not African-American.
In fact, I wouldn’t want to be African-American in our society. Our nation has improved with regard to accepting people of all races (thanks to Dr., martin Luther King, Jr.), but we still have a l-o-n-g way to go. An African-American person is judged no matter where they go. When have you ever heard of a white person being afraid of another white person walking past them?
Geraldo Rivera said that Trayvon’s hoodie is as much to blame for his death as the man who shot him. At first, this comment enraged me. Now, I agree with what I think Geraldo was implying, which is that a young black man wearing a hoodie conjures up only one image: a thug. It’s true. If I wear a hoodie and walk down the street, no one will be suspicious of me. It’s sad that Trayvon didn’t have the right to wear whatever he wanted. Instead, his clothing choice actually contributed to his death. Let me be clear: a hoodie did not kill Trayvon, however, I wonder if he would still be alive had he not been wearing one. And, because of this case, are we to send a conflicting message to our children in order to save their lives? A message which says, “We live in a free country, you are equal, but don’t wear a hoodie in public or else you might get shot.”
Equality bites in America if you are different in any way. Unfortunately, this lesson cost Trayvon Martin his life.
24 Mar 2012
Tags: bed, bodies, fabric, forbidden, hearts, love, lust, passion, sheets, soft, warm, woven
Our bodies melted
between the sheets of passion
that lay in a heap
on my bed
Sheets that are reckless
like the expression
of our forbidden love
warm and soft
waiting to be touched
Sheets that are now neat and crisp
but not clean of the lust
that is deeply woven
in the fabric of our hearts
An unmade bed
is all that is left
to remind me
(c) Nicole Luongo
A poem from Naked Desires: a poetic diary straight from the heart.
21 Mar 2012
Tags: cheek, dark, dreams, knees, lips, love, night, sheets, sleep, slowly, softly
in my dreams
when you come to me
late at night
in the dark
while I sleep
you move gently
between the sheets
and press against me
with your cheek
our lips meet
my knees feel weak
it’s only your touch
in my dreams
when love awaits.
(c) Nicole Luongo
18 Mar 2012
Tags: anti-theft device, good luck, Honda, Hyundai, luck, lucky, Ravelco, St. Patrick's Day
I really don’t consider myself an unlucky person. I’ve found spare change on the ground a time or two; sometimes, even dollar bills! Last night, on St. Patrick’s Day, I headed out to Your Big Picture Cafe in my green tunic – excited to see friends and hear good music.
Maybe others would consider me unlucky, especially if I tell them the story about how my 1998 Honda Civic was stolen last April. Even after a such personal violation, I moved throughout life grateful for what I have – and, sometimes, for what I don’t have. It was an anxious two months, trying to find a good car I could actually afford.
Boy, did I hit the jackpot when I found a 2009 sunshine yellow Hyundai Accent decked out with extras (courtesy of the previous owner) like a GPS system and a hands free communication device. I went to great lengths to protect my new car. I invested in a Ravelco anti-theft device. http://www.ravelco.com. It’s a car specific plug that prevents your vehicle from starting unless it is securely in place. Although costly ($500), I recommend Ravelco to anyone who wants to do their best to prevent their car from being stolen. It may save you money on insurance premiums, too.
Last night, I arrived at the cafe, shut off my car, removed the plug, called a friend, then started up the walkway to the store’s entry. There were clues all night that something was wrong, only I wasn’t paying attention. I noticed that my plug was not on my key chain. I didn’t think anything of it because I do not always remember to remove the plug. Plus, I was in a bit of a daze from being bored all week.
At the end of the evening, my friend Matt walked me to my car. He drove off while I got in my car and quickly realized I could not start it. I called Matt and asked him to come back. Thank God he answered his phone! Both of us looked for the plug everywhere – inside my car, inside the cafe, on the walkway leading to the cafe, underneath my car, inside my car again – well, you get the idea. Did we find the missing plug? No such luck.
Matt drove me home so I could get my back-up plug. I went out this morning, hoping I’d find it hiding in my car, although just a remote possibility given it’s size. Sadly, it wasn’t there. That’s okay, at least I still had my car and could drive it. I liked the idea of having two plugs (included in the installation price). If I want a second one, I’ll have to pay $35 for it. Maybe if I tell the company I lost it they will send me one for free? I know what you’re thinking…”GOOD LUCK!”