Forrest Gump was right — life is a box of chocolates, you never know what you’re going to get! I could have never predicted that in just a few short years, I’d be a respected advocate in the cerebral palsy community. Now, my advocacy work will effect change globally!
I’m honored to share a special announcement from World CP Day:
It is with great pleasure that I can confirm your appointment on the new World Cerebral Palsy Day (WCPD) Committee. Welcome!
The Committee comprises 12 people – including individuals with cerebral palsy, parents, and researchers/clinicians – from the USA, India, Singapore, Turkey, New Zealand, France, Nigeria, Mexico and the United Kingdom. We received almost 100 expressions of interest for this honorary role, which was quite extraordinary.
World CP Day is only in its 4th year but has exceeded all expectations – with participation from over 52 countries and thousands of individuals. With a modest budget, but a highly motivated community, it has the potential to be a powerful force for social impact to benefit people with CP and their families across the world.
Our aim is to support local action and, by doing so, build the global movement to ensure that people with CP have the same rights, access and opportunities as others in their communities.
Robyn Cummins, World Cerebral Palsy Day Manager”
Nearly 3.5 years after my surgery, I finally found something worthy of some of my fundraising money: a purple (my favorite color) AeroPilates Reformer Plus purchased on eBay!
I’ve heard about the benefits of Pilates, and I’ve wanted to try it. I know it will work my muscles in an entirely different way. Jumping around is fun but I look forward to gentler form of exercise. I know it will work my muscles in an entirely different way. Looks easy? Think again!
Thank you to everyone who donated to my fundraiser. I’m putting the money to good use. This is What CP Looks Like!
I’m honored to have my name on this shirt — designed by my friends Richelle Heath, Heaven Ramsey and their team AKA A Stairway to the Stars Heaven’s Journey with CP — to raise awareness for World CP Day on October 5. It’s so cool to see so so many of my friends’ names on the this design — along with world-renowned neurosurgeon for SDR Dr. Park — plus Alyssa Porter and Christopher Ulmer from Special Books by Special Kids. The shirt also includes the #WorldCPDay hashtag per request from Robyn Cummins at World CP Day!
Please join the World CP Day t-shirt Sale event on Facebook. Help us paint the world green by purchasing a shirt and/or sharing this blog post to increase sales. The shirts will be on sale from July 4 – September 15, 2016. **The prices include shipping and handling.** Note: You DO NOT need a PayPal to make a purchase! Click on the link and it will give you OTHER payment options. **U.S. orders ONLY.**
Thank you for supporting the estimated 800,000 children and adults (I am one) in the United States — and over 17 million worldwide — living with cerebral palsy. Let’s show the world What CP Looks Like!
CerbralPalsy.org wrote a feature article about me on their blog! I thank them for raising awareness for CP, SDR and for shining a light on adults with cerebral palsy, since we are often forgotten.❤
BREAKING NEWS: Dreams really do come true! I’ve been chosen to be interviewed by Christopher Ulmer from Special Books by Special Kids on June 23! I’ve always wanted to meet Chris and cannot believe this is real! I’m honored to represent the 17 million people who have cerebral palsy and to show the world What Cerebral Palsy Looks Like! Of course, I’ll talk about SDR, too.🙂
Be sure to check out SBSK’s new website and donate if you can. Please share!
Stay tuned for the link to the video!
You’re all invited to subscribe to the new YouTube channel for What Cerebral Palsy Looks Like. It’s just getting started so there are no videos posted yet.
Thank you for all the support! We are a community committed to raising awareness for CP. Together we will show the world #whatCPlookslike!❤
I’ve created a new Facebook page so the cerebral palsy community can show the world what we CAN do! Help us spread awareness — invite friends, share, tweet (use the hashtag #whatCPlookslike) — for CP and shatter stereotypes! Join the campaign and show the world that you’re enabled, not disabled!