World CP Day T-Shirt Sale

The World CP Day T-shirt sale has been EXTENDED! Here are the details:

By popular demand, and because we aim to please, we are re-opening the World CP Day T-shirt sale.

Sale runs from tonight 9/21/16 until Sunday September 9/25/16 at 11:59 PM Eastern time.

We will only offer short sleeve sizes youth small through adult 3x.

Every effort will be made to have delivery to you by October 5, but there is no guarantee.

Until this is back up and running on the website, I will take orders via phone at 719-377-2147. The link is http://www.fonsecacomedy.com/dream-team

Nicole Luongo

I’m honored to have my name on this shirt — designed by my friends Richelle Heath, Heaven Ramsey and their team — to raise awareness for World CP Day on October 5.  Please join their World CP Day t-shirt Sale event on Facebook.

It’s so cool to see so so many of my friends’ names on the this design — along with world-renowned neurosurgeon for SDR Dr. Park  — plus Alyssa Porter and Christopher Ulmer from Special Books by Special Kids. The shirt also includes the #WorldCPDay hashtag per request from Robyn Cummins at World CP Day!

Help us paint the world green by purchasing a shirt and/or sharing this blog post to increase sales. The shirts will be on sale from July 4 – September 15, 2016. **The prices include shipping and handling.** Note: You DO NOT need a PayPal to make a purchase! Click on the link and it will give you…

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World CP Day Committee

Forrest Gump was right — life is a box of chocolates, you never know what you’re going to get! I could have never predicted that in just a few short years, I’d be a respected advocate in the cerebral palsy community. Now, my advocacy work will effect change globally!

I’m honored to share a special announcement from World CP Day:

“Dear Nicole,

It is with great pleasure that I can confirm your appointment on the new World Cerebral Palsy Day (WCPD) Committee. Welcome!

The Committee comprises 12 people – including individuals with cerebral palsy, parents, and researchers/clinicians – from the USA, India, Singapore, Turkey, New Zealand, France, Nigeria, Mexico and the United Kingdom. We received almost 100 expressions of interest for this honorary role, which was quite extraordinary.

World CP Day is only in its 4th year but has exceeded all expectations – with participation from over 52 countries and thousands of individuals. With a modest budget, but a highly motivated community, it has the potential to be a powerful force for social impact to benefit people with CP and their families across the world.

Our aim is to support local action and, by doing so, build the global movement to ensure that people with CP have the same rights, access and opportunities as others in their communities.

Warm regards,
Robyn Cummins, World Cerebral Palsy Day Manager”

 

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SDR Update: Pilates and Physical Therapy

Nearly 3.5 years after my surgery, I finally found something worthy of some of my fundraising money: a purple (my favorite color) AeroPilates Reformer Plus purchased on eBay!


I’ve heard about the benefits of Pilates, and I’ve wanted to try it.  I know it will work my muscles in an entirely different way. Jumping around is fun but I look forward to gentler form of exercise. I know it will work my muscles in an entirely different way. Looks easy? Think again!

Thank you to everyone who donated to my fundraiser. I’m putting the money to good use. This is What CP Looks Like!

World CP Day T-Shirt Sale

I’m honored to have my name on this shirt — designed by my friends Richelle Heath, Heaven Ramsey and their team — to raise awareness for World CP Day on October 5.  Please join their World CP Day t-shirt Sale event on Facebook.

It’s so cool to see so so many of my friends’ names on the this design — along with world-renowned neurosurgeon for SDR Dr. Park  — plus Alyssa Porter and Christopher Ulmer from Special Books by Special Kids. The shirt also includes the #WorldCPDay hashtag per request from Robyn Cummins at World CP Day!

Help us paint the world green by purchasing a shirt and/or sharing this blog post to increase sales. The shirts will be on sale from July 4 – September 15, 2016. **The prices include shipping and handling.** Note: You DO NOT need a PayPal to make a purchase! Click on the link and it will give you OTHER payment options. **U.S. orders ONLY.** Every shirt comes with a free pin and wristband!

Thank you for supporting the estimated 800,000 children and adults (I am one) in the United States — and over 17 million worldwide — living with cerebral palsy. Let’s show the world What CP Looks Like!

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Special Books by Special Kids Interview

BREAKING NEWS: Dreams really do come true! I’ve been chosen to be interviewed by Christopher Ulmer from Special Books by Special Kids on June 23! I’ve always wanted to meet Chris and cannot believe this is real! I’m honored to represent the 17 million people who have cerebral palsy and to show the world What Cerebral Palsy Looks Like! Of course, I’ll talk about SDR, too.🙂

Be sure to check out SBSK’s new website and donate if you can. Please share!

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Stay tuned for the link to the video!