2016’s BIG Moments!

Happy New Year! Here are my BIG moments for 2016:

I got a response from The White House!

I got a verified Facebook page (the blue check mark)!

I got my content removed from 20+ sites on the Internet!

I sold copies of my poetry book.

I advocated for cerebral palsy awareness through my blog and published articles.

My blog got 5,400+ views from 3,437+ visitors.

I shared my SDR (selective dorsal rhizotomy) surgery story, and by doing so, more adults and children went on to get new legs.

I did my first radio interview about Cerebral Palsy Awareness Month 2016, SDR and more with Edwina Wilson.

My SDR Article for The Huffington Post was republished on The Good Men Project.

My SDR Article for The Huffington Post was republished on LyfeBulb.

The Mighty republished this blog post and this blog post two days apart!

I created new FB and Twitter pages and a YouTube Channel for #whatCPLooksLike.

CerebralPalsy.org wrote a feature story about me – One Woman’s Cerebral Palsy Story Should Encourage Sharing Your Own

I was interviewed by Special Books by Special Kids.

Carson Daly tweeted me back! Now, if only he’d send Jennifer Aniston the article I wrote about her for HuffPost (inspired by his interview). 🙂

World CP Day selected me to be a member of the 2016-2017 World CP Day Committee.

World CP Day made two different FB postcards (see both in this blog post) quoting me and they were very successful.


I wrote a guest blog post for World Cerebral Palsy Day 2016.

The Mighty republished my guest blog post for World CP Day.

World CP Day featured me in their 2016 highlight reel video!

Thanks for your support. See you in 2017!

Why I’m Promoting Physical Fitness on World Cerebral Palsy Day

The Mighty published the article (click here to read it) I wrote for World CP Day!

Please wear green to show support! You can also send me your pictures or post them on What CP Looks Like.

Thank you! ❤

World CP Day T-Shirt Sale

The World CP Day T-shirt sale has been EXTENDED! Here are the details:

By popular demand, and because we aim to please, we are re-opening the World CP Day T-shirt sale.

Sale runs from tonight 9/21/16 until Sunday September 9/25/16 at 11:59 PM Eastern time.

We will only offer short sleeve sizes youth small through adult 3x.

Every effort will be made to have delivery to you by October 5, but there is no guarantee.

Until this is back up and running on the website, I will take orders via phone at 719-377-2147. The link is http://www.fonsecacomedy.com/dream-team

Nicole Luongo

I’m honored to have my name on this shirt — designed by my friends Richelle Heath, Heaven Ramsey and their team — to raise awareness for World CP Day on October 5.  Please join their World CP Day t-shirt Sale event on Facebook.

It’s so cool to see so so many of my friends’ names on the this design — along with world-renowned neurosurgeon for SDR Dr. Park  — plus Alyssa Porter and Christopher Ulmer from Special Books by Special Kids. The shirt also includes the #WorldCPDay hashtag per request from Robyn Cummins at World CP Day!

Help us paint the world green by purchasing a shirt and/or sharing this blog post to increase sales. The shirts will be on sale from July 4 – September 15, 2016. **The prices include shipping and handling.** Note: You DO NOT need a PayPal to make a purchase! Click on the link and it will give you…

View original post 51 more words

World CP Day Committee

Forrest Gump was right — life is a box of chocolates, you never know what you’re going to get! I could have never predicted that in just a few short years, I’d be a respected advocate in the cerebral palsy community. Now, my advocacy work will effect change globally!

I’m honored to share a special announcement from World CP Day:

“Dear Nicole,

It is with great pleasure that I can confirm your appointment on the new World Cerebral Palsy Day (WCPD) Committee. Welcome!

The Committee comprises 12 people – including individuals with cerebral palsy, parents, and researchers/clinicians – from the USA, India, Singapore, Turkey, New Zealand, France, Nigeria, Mexico and the United Kingdom. We received almost 100 expressions of interest for this honorary role, which was quite extraordinary.

World CP Day is only in its 4th year but has exceeded all expectations – with participation from over 52 countries and thousands of individuals. With a modest budget, but a highly motivated community, it has the potential to be a powerful force for social impact to benefit people with CP and their families across the world.

Our aim is to support local action and, by doing so, build the global movement to ensure that people with CP have the same rights, access and opportunities as others in their communities.

Warm regards,
Robyn Cummins, World Cerebral Palsy Day Manager”