Kelly’s Choice Radio Show Interview

I will be on Kelly’s Choice Radio Show (click on the link to listen) with Edwina Wilson on today, March 3, from 2-3 p.m. EST discussing Cerebral Palsy Awareness Month, SDR, What CP Looks Like and more! I’m honored to be on the show two years in a row.

Let’s Talk Cerebral Palsy on Love860AMWAEC! Click listen live on http://www.kellyschoiceinc.org to listen to the show.

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Special Books by Special Kids Interview

BREAKING NEWS: Dreams really do come true! I’ve been chosen to be interviewed by Christopher Ulmer from Special Books by Special Kids on June 23! I’ve always wanted to meet Chris and cannot believe this is real! I’m honored to represent the 17 million people who have cerebral palsy and to show the world What Cerebral Palsy Looks Like! Of course, I’ll talk about SDR, too. 🙂

Be sure to check out SBSK’s new website and donate if you can. Please share!

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Stay tuned for the link to the video!

1/23/17: UPDATE – I know many of you have been waiting to see my interview with Special Books by Special Kids. Due to technical difficulties, it will not be featured on their page. I’ll see if Chris can send me a clip to share. I look forward to being interviewed again when he comes back to South Florida.

31 Facts for Each Day of Cerebral Palsy Awareness Month

The Mighty published my article about Cerebral Palsy Awareness Month! Click on the link and comment directly under it (on The Mighty’s site); this will help a lot.

Please share to raise awareness for cerebral palsy and SDR.  Thank you! ❤

Happy Birthday + Bike Camp!

“Life is like riding a bicycle. To keep your balance, you must keep moving.”  –Albert Einstein

Note: I have cerebral palsy. I had selective dorsal rhizotomy (SDR) on March 29, 2013. The number one goal on my post-SDR bucket list? Learn to ride a two-wheel bike.

Bike Camp Day 1: I turned 41 today! Thanks to my brother John and everyone at Baldwin iCan Bike for making me feel special. The staff and volunteers sang Happy Birthday and gave me a beautiful bouquet of sunflowers!

image     imageIf I learn…or should I say WHEN I learn to ride a two-wheel bike I may cry. I’m not sure I can hold it in! Being able to do something that is a right of passage for so many feels surreal. I hope I get the hang of it (when it starts getting harder)! I need help on and off the bike because I can’t lift my foot high enough. Thank God for my spotters. They made sure I didn’t fall. I would’ve gone down a few times without them.

Day Two Today was tough! There aren’t adequate words to describe how hard it is to do something your brain and body don’t naturally get. I pushed through and am more sore than yesterday. The tandem ride with Clayton was so much fun!

Day Three: Bruising & Cruising After getting a new bike (the roller bike kept leaning, making it harder for me to learn, since I also tend to lean my body) and falling a couple of times (not fun but I got right back on), I was able to graduate to a regular two-wheel bike. I didn’t think that would happen today! I did great! I went on another tandem ride so Clayton could feel/see how I was riding and give me feedback. Note to self: holding the handlebars too tight makes everything harder! If I keep getting better, I can ride outside in the parking lot. Some kids got to do that today. I’m sore and tired every day. I hope they don’t have to wheel me out on a stretcher on Friday!

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Day Four: Overcoming Fears & Tears of JOY! I started out struggling again. I couldn’t figure out why I kept leaning my body and/or hips. Clayton, the bike whisperer, worked with me and found the solution. All it took was a tap on my hip every time I leaned. After practicing with Dawn and Rachel, this happened:

I cried after this ride. It was so emotional for me. I had to take a break, hug my brother and wipe the tears. Clayton, Dawn and Rachel hugged me. They were so happy to see me riding on my own! And, a reporter interviewed me for a story in the Baldwin City Signal.          imageimage

Graduation Day: Spills & Thrills! Bike camp was full of thoughts (“I can’t do this” or “I’m not getting it” crept in) and emotions, both of which I tried to keep to myself. I wanted to trust the process as much as possible. When I had no idea what I was doing, I kept going. When I got frustrated and questioned if I could do this, I kept going. When my brain and body were taxed to the max (I have the bruises to prove it), I kept going. When Hannah walked me to my two-wheel bike, despite feeling scared, I hopped on and kept going! When I gripped the steering wheel too tight — holding on for dear life — especially when I thought a crash was coming, I gradually learned to keep going. When I realized a lot of the riders were outside and I was inside, I kept going at my own pace. If I was ready, I’d be out there, too. I was happy for the kids. I knew I’d be okay if I didn’t progress to the parking lot by today. Thankfully, I caught on quickly. Clayton worked with me so I’d be ready to face the pavement. When I fell so hard it hurt, I kept on going when I DID NOT want to get on the bike. Lesson learned: KEEP GOING!

Whenever you need encouragement to continue on the road of life, remember the words of the late Jim Valvano: “I urge all of you to keep your dreams alive in spite of problems. Don’t give up, don’t ever give up.”

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Thank you to everyone at Baldwin iCan Bike – the wonderful hosts Barb and Betsy, Clayton the bike whisperer, Hannah – and all the supportive volunteers who helped make riding a two-wheel bike a dream come true. The gift you give those of us with developmental and/or physical disabilities is priceless!

Riding a bike is a rite of passage many of us would never experience if it weren’t for your organization. Thanks for believing in and showing us that we CAN do what many believe is impossible. It IS possible! All it takes is a little creativity (the rollers are genius), dedication, kindness and, in my case – blood, sweat, and tears. I need a bike and some additional training before I’ll be able to ride on my own. Because of bike camp, I’ll never forget how great it feels to ride like the wind!